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Read conversations, start a discussion, and connect with others about Lupus.

Has anyone done the Benlysta infusions?

I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...

Face Symptoms and Steroid Side-effects

This post was originally written by a community member (@jan1956) as their status update and has been reposted in a forum format to encourage community conversation and support! "Hi I...

Live shingles vaccination for lupus patients??

Anyone had experience of live or non live vaccinations for shingles. Any side effects??...

Methotrexate injections

I have just started (4 weeks) on 10mg methotrexate by injection. My problem is I am having severe uncontrollable bouts of diarrhoea. I'm afraid to leave the house at the...

Methotrexate, has anyone else been prescribed this?

I have just been put on methotrexate and I would like to check on the side effects with others....

Moon Phases

Anyone have some issues as the moon passes through different phases like me? It has happened to me since I was a child. I guess if it can have an...

How to Deal with Prednisone Side Effects?

Hi everyone, I've been diagnosed with lupus for 8 months now. At first, no one warned me about the side effects either related to lupus or its medicines. Besides the...

The covid-19 shot

Are we supposed to get the shot if we have lupus or is it best not to need answers ...

Anyone Else Unable to Take the Flu Shot?

Is there anyone else who can not take the flu shot? Cause renal failure....

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