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Forums

Read conversations, start a discussion, and connect with others about Lupus.

Active 5 days ago

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after...

Active 5 days ago

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Active 5 days ago

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 7 days ago

How to deal with the flushes of heat and pain on each side of my head?

Active 7 days ago

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

Active 7 days ago

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Active 7 days ago

Is there a connection between narcolepsy and lupus?

I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so...

Active 7 days ago

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I...

Active 8 days ago

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as...

Friends & Family

I was diagnosed with SLE when I was 25. My husband left me with 2 small kids and my family got sick...

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