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Active 7 days ago

Simple joys or special occasions?

It definitely felt like a long, gloomy winter for most of us. What is one small comfort or event you are looking...

Always sick

Does anyone else's family always complain about you being sick?? If I can't go somewhere if I'm sick and they just don't...

What do I tell my Boss

At work I am constantly overwhelmed and not sure what to tell my supervisor, when I’m good to do my job but...

Should I start methotrexate?

I’m 77 - have had three major joint operations in this past year; left rotator cuff, left partial hip replacement (not a...

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

sleep

how do you get a good nite sleep when the pain wakes you up? do not like sleep aids....

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as...

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

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