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Read conversations, start a discussion, and connect with others about Lupus.

Sinius problem, hearing problems, feeling awful.

I've googled and it does say you can have fullness in your head, talking is scratchy, hearing is like you're in a...

Shortness of breath and fatigue

My bloodwork is all fine and so are my lungs but I still get out of breath for stupid things and also...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I...

coughing

I have a chronic cough and after many doctor appointments, noone can find the cause. Has anyone else been dealing with such...

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently...

Lupus symptom or not?

Just curious… does anyone else have times when their tongue is painful, like it’s been burned? When this happens there are no...

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here...

Lupus HELP

Why haven't we heard more about getting help with clinicals/Trials. Money for prescriptions. I was on Journavx and paying $30.00 with a...

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