Two of our mothers pass away with Lupus!More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...Reactions0reactionsComments2 repliesAwareness
State disabilityHow do you all feel about State disability? I’m trying for myself, but was turned down two times . I will be seeing a judge in June I also been...Reactions0reactionsComments1 repliesAwareness
Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us. If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...Reactions0reactionsComments6 repliesDiagnosisAwareness
What phrases are you tired of hearing?When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...Reactions0reactionsComments43 repliesAwarenessCopingFriends & Family
MisdiagnosisFar too often, it takes years between symptom onset and receiving an accurate lupus diagnosis. When did your symptoms begin versus when you received your diagnosis? Was anyone here initially...Reactions0reactionsComments15 repliesAwarenessDiagnosis
Research into antigens and nanotechnology Found an article in Nature dated 25 January 24 discussing the use of antigens and nanotechnology to treat autoimmune disease. Anybody else hearing about this?...Reactions0reactionsComments3 repliesAwareness
Need some opinionsI have lupus and I’m new here. I keep having these insane symptoms and I need to know what’s going on with me! I’m so confused! Is this what it’s...Reactions0reactionsComments3 repliesAwareness
Naturopathic medicine Hello Warriors. Does anyone on the forum use naturopathic treatments, like meditation, exercise and nutrition? I have an appointment in a few days with a neurologist am not sure of...Reactions0reactionsComments4 repliesAwarenessExerciseDiet & Nutrition
DietI'm a full gastric bypass patient. Nobody can point me in the right direction for eating with lupus. It's a odd combination. I don't eat like normal people. I'm on...Reactions0reactionsComments9 repliesAwarenessDiet & Nutrition
Curious…Food changes?Hi, I have been reading a lot of the comments about all you amazing people! I just want each and Everyone to know, Each of You are seen, I See...Reactions0reactionsComments2 repliesDiet & NutritionSymptomsAwareness