What does it mean to live with lupus?What do you wish the world better understood about life with lupus?...reactions60repliesAwareness
APS Pregnancy LupusRecently been diagnosed with lupus after having complications leading to a baby loss at 23 weeks. Wondering how people went about getting diagnosed and if medications something that help build...reactions1replyAwarenessSide EffectsAnxiety
Keep my spoonsI got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...reactions1replyAwarenessTips & AdviceBrain Fog
Two of our mothers pass away with Lupus!More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...reactions2repliesAwareness
Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us. If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...reactions6repliesDiagnosisAwareness
MisdiagnosisFar too often, it takes years between symptom onset and receiving an accurate lupus diagnosis. When did your symptoms begin versus when you received your diagnosis? Was anyone here initially...reactions15repliesDiagnosisAwareness
Research into antigens and nanotechnology Found an article in Nature dated 25 January 24 discussing the use of antigens and nanotechnology to treat autoimmune disease. Anybody else hearing about this?...reactions3repliesAwareness
Need some opinionsI have lupus and I’m new here. I keep having these insane symptoms and I need to know what’s going on with me! I’m so confused! Is this what it’s...reactions3repliesAwareness
Naturopathic medicine Hello Warriors. Does anyone on the forum use naturopathic treatments, like meditation, exercise and nutrition? I have an appointment in a few days with a neurologist am not sure of...reactions4repliesAwarenessExerciseDiet & Nutrition
DietI'm a full gastric bypass patient. Nobody can point me in the right direction for eating with lupus. It's a odd combination. I don't eat like normal people. I'm on...reactions9repliesAwarenessDiet & Nutrition