Winning The War of LupusI was diagnosed with SLE Lupus in 1999, it's been a long journey that has helped me to grow stronger. As most lupus patients would say just take it one...reactions3comments
What Do You Know About Rheumatic Diseases?What is a rheumatic disease? A rheumatic disease is an autoimmune and inflammatory condition that causes the body’s immune system to attack a person’s joints, muscles, bones, and organs. There...reactionscomments
3 Things I Struggled With After Being Diagnosed With LupusWhen the doctor said, "you have lupus,” I felt like the floor dropped out from underneath me. At our first appointment, he’d told me that lupus was his suspected diagnosis...reactions9comments
My MGUS and Lupus ConnectionI’ve had lupus and Sjogren’s since my late thirties, I’m now in my sixties. I would say that I’ve been on the less severe spectrum with no life-threatening features of...reactions8comments
Family Planning with LupusFamily planning can be a tricky, delicate subject for many people. Having lupus only makes the matter more challenging. While it does not mean that children are not a possibility...reactions3comments
A Childhood StoryI've had Lupus since a child. I experience pain differently compared to many. I thought the pain was a normal way of life and never really complained. I was a...reactions5comments
Lupus And A Sense of ControlWe recently surveyed hundreds of people with lupus to find out more about their daily experiences, diagnosis journey, symptoms, and how it all affects life in general. The results from...reactions5comments
Building a Career as a Lupus WarriorHealth Union did a Lupus In America survey that revealed: "More than 6 in 10 people with lupus feel their lupus interferes with their ability to work." I have felt...reactions1comment
Getting Disability After Getting a Denial LetterWhen I first had my kidney failure, I never thought that I could even get insurance because I was denied the first time around. I know it's overwhelming having all...reactions5comments
Migratory Joint Pain, Curbing the Pain, and a Potential FlareAll my joint problems, pain, or inflammation, have always been "migratory." This type of joint pain occurs with inflammation spreading from one joint to another at a time. In my...reactions2comments
Retaining FluidMost people don’t know or will not understand how fluid retention starts, and also how you retain fluid. Well, my experiences have taught me to notice when I start to...reactions1comment
How Lupus Impacts Work and CareerLupus can affect many different areas of a person’s wellbeing. Physical symptoms, emotional stress, and mental health impacts can all take various tolls on quality of life. One area that...reactionscomments
Chest Pain and Shortness of BreathWhen dealing with lupus, I would not expect to have chest pain or even shortness of breath. However, I have had plenty of times where I have had chest pain...reactions1comment
My First Benlysta InfusionAt 7:45 a.m., I approached the medical staff stationed outside my doctor's office to have my temperature taken. My husband had just dropped me off for my first infusion treatment...reactionscomments
4 Items I Wish I Would Have Researched Before Moving CitiesMoving is a part of life. Whether it’s a new job, family, or circumstance. Moving is a hard reality of life. Many people research schools, crime, neighborhoods, etc. But having...reactionscomments
Lupus and Glandular FeverWhen I was 22 years old I got extremely sick with glandular fever. I still remember it so vividly. I had been to the gym for a workout and swim...reactions3comments
Ease Joint and Muscle Pain With LupusNine times out of 10, when you are having a flare-up, they start to attack your joints first. Sometimes you can’t notice the symptoms because it seems like a normal...reactionscomments
Preparing to Start Infusion Treatment for LupusFor over 50 years, there were only 3 FDA approved drugs for lupus: hydroxychloroquine, corticosteroids, and aspirin. Other medications, such as immunosuppressants and chemotherapy, have been used off-label to successfully...reactionscomments
Lupus: Immunity and InsectsSummer. The time I year I bask in the sun. I am one of the lucky ones, even with all the medications I take, I do not have sun sensitivity...reactions10comments
When Lupus Limits Physical AffectionDo you know what my husband needs? A hug. A reassuring hand on his arm. A gentle back rub. All simple physical gestures, and all too frequently beyond my ability...reactions2comments
