Pants That Covered My Pain and Brightened My FutureI crave food! I crave food! I crave food all of the time! Whenever my rheumatologist and I discuss a regimen of...reactions1comment
Community Views: What Lupus Fatigue Feels LikeFatigue is an intense feeling that many people do not fully understand until they are living with it. Fatigue is very different...reactions22comments
Things I am Tired of People Saying Because I Have a Chronic IllnessThere are so many things that I am tired of saying because of my autoimmune disease. Most of it relates to spousal...reactions6comments
Accepting Lupus After Your Mourning PeriodBeing diagnosed with lupus was probably one of most difficult moments you have had to deal with. You most likely had a...reactions5comments
Advocacy: We Have the Strength in Service of Ourselves“You have the strength to get up.” Many years ago, a woman got up in a room full of over 300 lupus...reactionscomments
Why Childcare Is Essential for Me as a Mom With LupusI am a stay-at-home mom and a work-at-home mom, but almost never at the same time. This is because I’m also a...reactions2comments
Judgments We Can Face With LupusI had to give up my career in the travel industry 15 years ago which was an incredibly difficult time in my...reactions1comment
You Should Tell Your StoryWhen I decided to make a lupus video for Facebook, I did not expect to get the recognition that I would get...reactionscomments
Why I Joined a Lupus Support GroupAt my very first support group meeting, I walked into the Italian restaurant with sweaty hands. Not even the aroma of garlic...reactions14comments
8 Tips for Parenting a Toddler When You Have LupusParenting a young child is physically demanding, and it’s often around-the-clock work. It’s been harder on my body than I expected. I...reactionscomments
Balancing a Healthy Diet With LupusMany have read and been told that there is a specific lupus diet that can help cure lupus. I have found that...reactions2comments
Am I a Clean Freak?Am I a clean freak or am I just concerned about my health? The more and more I think about that question...reactions3comments
The First Time Someone Glared At Me For Using a Handicapped PassThe first time someone gave me a dirty look for using a handicapped pass happened in the grocery store parking lot. I...reactionscomments
Communication is KeyMore than 24 million people in the United States have an autoimmune disease, according to the NIH. And even more experience chronic...reactionscomments
Practical Ways to Overcome Depression While Beating LupusWhat the hell? Helpless... Hopeless... Sometimes, I’m just sick of being the adult in this lupus relationship. I don’t know if I’m...reactions5comments
What Are Tips For Building a Good Lupus Doctor Relationship?A good doctor treats the whole patient. I am not talking about the philosophy held by many in holistic medicine. I am...reactions3comments
Give Me My Life Back, LupusI want my old life back. Yes, I want my old life back. I want to be able to work and come...reactions2comments
Amplifying Black Voices: How Healthcare Providers Can Better Serve the CommunityFor our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living...reactionscomments
Let’s Talk About Perfect Patient BurnoutI can’t recall what year in my lupus diagnosis I began feeling this way. It seemed the pressure was mounting with each...reactions20comments
A Day in the Life With Lupus: Evening and NightAround 5 pm, when my husband is done working, I usually take a break to rest before anything else. I’ll pass the...reactionscomments
