You Have Lupus. Now What?I did feel strange the day I went for Jury Duty. In fact, after arriving at the courthouse, I was so tempted to let the officer know that I was... By fancy24 min readBookmark for laterReactions 0 reactions Comments11 comments
Am I a Good Caregiver?With my mother having lupus, there have undoubtedly been times where I have had to step more into a caregiver role than others. Sometimes I may have to pick up... By Eric Chiyembekeza2 min readBookmark for laterReactions 0 reactions Comments1 comments
Experiences With DoctorsWe all have those experiences with lupus doctors that make you want to keep them and change them. Some may be rude and some may be nice. It depends on... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments7 comments
My Experiences With Depression From BenlystaDespite my best efforts, Benlysta and I cannot get along. Benlysta (belimumab) is a biologic medication explicitly made for lupus. After relying on antimalarial (hydroxychloroquine) and immunosuppressant (azathioprine) medications for... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments7 comments
3 Tips For Your First Rheumatologist VisitThe first time you hear that you need to see a specialist of any kind is scary. Your mind is reeling. What is going on? I have what? What does... By Amber Blackburn, RN4 min readBookmark for laterReactions 0 reactions Comments0 comments
Challenging SymptomsHi my name is karen willis, I am 51 years old. I was diagnosed with lupus Nov. 19, 1999. I have 3 adult daughters, with my first grandchild on the... By kardannes1 min readBookmark for laterReactions 0 reactions Comments25 comments
Lupus Arthritis And Useless HandsQuite frankly, I'm fed up with my hands. I’m furious with them. Their pain, swelling, and stiffness have prevented me from doing so many things. Pain in my finger joints... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments48 comments
Tips for Benlysta InfusionsSince 2011, people with lupus have had our very own biologic medication: Benlysta (belimumab). While it doesn’t work for everyone, many have found it to be an outstanding treatment for... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments2 comments
The Spoon Theory ExplainedWhen someone brings up spoons, what is your first thought? My guess would be that you think about the piece of silverware. One that is used to eat things like... By Amber Blackburn, RN5 min readBookmark for laterReactions 0 reactions Comments2 comments
10 Things Not to Say to Someone with LupusLupus is an invisible illness, one that you cannot just notice by looking at someone. A disease that may not affect one's appearance, but it affects how their body feels... By Negin Dadkhah3 min readBookmark for laterReactions 0 reactions Comments2 comments
Digestive System and LupusI have had issues with my digestive system plenty of times. I have had something called gastritis. Gastritis is inflammation of the stomach. The symptoms of this condition are nausea... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments0 comments
Dental Health and LupusAutoimmune diseases like lupus occur when the immune system mistakenly attacks itself. For people with lupus, these attacks commonly cause fatigue and joint pain. However, people with lupus also have... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments21 comments
Take the Connected Health Survey!In the digital age, there are so many devices, websites, and technologies related to health. From fitness trackers to mobile apps, we use connected health technology to track symptoms, monitor... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Diet Considerations for LupusIf you are a lupus patient, chances are, you have tried a diet trend at some point. You might have gone gluten-free or vegan. You might have eliminated red meat... By Negin Dadkhah3 min readBookmark for laterReactions 0 reactions Comments5 comments
Winning The War of LupusI was diagnosed with SLE Lupus in 1999, it's been a long journey that has helped me to grow stronger. As most lupus patients would say just take it one... By thie1 min readBookmark for laterReactions 0 reactions Comments3 comments
What Do You Know About Rheumatic Diseases?What is a rheumatic disease? A rheumatic disease is an autoimmune and inflammatory condition that causes the body’s immune system to attack a person’s joints, muscles, bones, and organs. There... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
3 Things I Struggled With After Being Diagnosed With LupusWhen the doctor said, "you have lupus,” I felt like the floor dropped out from underneath me. At our first appointment, he’d told me that lupus was his suspected diagnosis... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments9 comments
My MGUS and Lupus ConnectionI’ve had lupus and Sjogren’s since my late thirties, I’m now in my sixties. I would say that I’ve been on the less severe spectrum with no life-threatening features of... By mlkeith19741 min readBookmark for laterReactions 0 reactions Comments8 comments
Family Planning with LupusFamily planning can be a tricky, delicate subject for many people. Having lupus only makes the matter more challenging. While it does not mean that children are not a possibility... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments3 comments
A Childhood StoryI've had Lupus since a child. I experience pain differently compared to many. I thought the pain was a normal way of life and never really complained. I was a... By tinaj1 min readBookmark for laterReactions 0 reactions Comments5 comments