Living

There are so many things that I am tired of saying because of my autoimmune disease. Most of it relates to spousal support. There have been times when people told...

Being diagnosed with lupus was probably one of most difficult moments you have had to deal with. You most likely had a whirlwind of emotions and negative thoughts. In all...

“You have the strength to get up.” Many years ago, a woman got up in a room full of over 300 lupus patients and caregivers and made this statement to...

I am a stay-at-home mom and a work-at-home mom, but almost never at the same time. This is because I’m also a lupus mom and I don’t have enough spoons...

I had to give up my career in the travel industry 15 years ago which was an incredibly difficult time in my life, I absolutely loved my job and I...

When I decided to make a lupus video for Facebook, I did not expect to get the recognition that I would get. All my life I only heard my mother...

At my very first support group meeting, I walked into the Italian restaurant with sweaty hands. Not even the aroma of garlic bread and marinara sauce could settle the nervousness...

Parenting a young child is physically demanding, and it’s often around-the-clock work. It’s been harder on my body than I expected. I constantly find myself at a crossroads where I...

Many have read and been told that there is a specific lupus diet that can help cure lupus. I have found that there is no established diet for lupus. Although...

Am I a clean freak or am I just concerned about my health? The more and more I think about that question, the more I realize that I just prefer...

The first time someone gave me a dirty look for using a handicapped pass happened in the grocery store parking lot. I was wearing a fluorescent coral dress and nude...

More than 24 million people in the United States have an autoimmune disease, according to the NIH. And even more experience chronic illness. In today’s age, it is hard to...

What the hell? Helpless... Hopeless... Sometimes, I’m just sick of being the adult in this lupus relationship. I don’t know if I’m angry, confident, depressed, anxiety-ridden, happy, sad, or indifferent...

A good doctor treats the whole patient. I am not talking about the philosophy held by many in holistic medicine. I am also not asking every physician to understand every...

I want my old life back. Yes, I want my old life back. I want to be able to work and come home. I want to be able to help...

For our Amplifying Black Voices series, we are exploring how bias in healthcare affects the quality of life for Black people living with autoimmune conditions. Science shows that biases and...

I can’t recall what year in my lupus diagnosis I began feeling this way. It seemed the pressure was mounting with each specialist visit as more and more medication was...

Around 5 pm, when my husband is done working, I usually take a break to rest before anything else. I’ll pass the care of our son on to him and...

When someone goes to the doctor, they believe they have the utmost respect from their doctors and they really do not. Imagine going to a doctor and they are telling...

Every day with lupus can present some difficult moments. One day you are on top of the world. The next day you are in the trenches fighting for your life. It...