My COVID Vaccine Experience, Part 2As I maneuvered my car past the line of people trailing into the hospital, I felt a sense of deja vu. Same...reactions2comments
Hoping for BetterI started to get signals that my body was having issues again. I should have listened but now my body is feeling...reactionscomments
How My Attitude Toward Medication Has ChangedIt’s been a little over 4 years since I was diagnosed with lupus and sent off to the pharmacy to pick up...reactions2comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with...reactionscomments
Stuck in Sinking Sand – How Do I Get Out? Part 1 of 3Stuck, splat, and stuck like that! Have you ever felt just stuck? Stuck in a conundrum of particles that keep you from...reactions2comments
Why Are People With Lupus So Tired?Nearly every person with lupus experiences fatigue at some point during the course of their disease. Fatigue can feel like crushing exhaustion...reactionscomments
My Daughter Ava Turned 1Ava has turned 1, and she has become more active than anything. She has shown me the better person that I could...reactions2comments
Tinnitus – My Constant CompanionLast year I had a terrible upper respiratory infection. A couple of days after the symptoms began I woke up with roaring...reactions8comments
Lupus and My Second COVID Vaccine DosePlease ask your medical professional if the Covid vaccine is suitable for you. The following is my experience under the care of...reactions1comment
How I Cope With FrustrationEver felt like you have had mood swings and do not know why? You would think that would only happen during our...reactions1comment
The Best Jobs for People Living With LupusFinding and holding down a job can be difficult when you’re living with a chronic illness like lupus. Even after the passage...reactions11comments
HOPE: Holding On Purposely Every DayHave you ever felt at odds with wanting to fight for your life and just giving up because of all the pain?...reactionscomments
Community Views: What Lupus Pain Feels LikeAs with any diagnosis, lupus affects people differently. However, most people with lupus experience pain at some point. It may include pain...reactions34comments
Dear Lupus, I Declare VictoryDear Lupus, What is your problem? Sometimes, you try to make this life so difficult. You get on my last nerve and...reactionscomments
Settling on AcceptanceLike anyone who has been diagnosed with a chronic condition, learning I had lupus was a pretty emotional time for me. I...reactions1comment
Interview With Entrepreneur and Lupus Warrior Sara GormanAs a newly diagnosed lupus patient in my early 20s, I used to hide my prescription bottles because I was so embarrassed...reactionscomments
Tips To Be Ready For The Bad DaysWe have all been there – work, school, and maintaining a household. Some things that most don’t think twice about. It is...reactions1comment
Tips For How to Make the Most of a Hospital StayAs lupus patients, our health can sometimes take a turn that requires immediate medical attention – which means a trip to the...reactionscomments
Victim or Victor?Do you ever feel like you are in a dark place? Like you can’t crawl out of a lupus flare before another...reactions2comments
My Journey To Filing For Disability, Part 1At almost 30 years old, in 2016, the word disability wasn’t even in my vernacular. Sure I knew what it was. I...reactionscomments
