Living

Filing for disability is a process that you truly can’t understand unless you've been there. It’s necessary, but it's a journey. When you are doing your research it doesn’t look...

As I maneuvered my car past the line of people trailing into the hospital, I felt a sense of deja vu. Same hospital. Same parking lot. Same signs directing patients...

I started to get signals that my body was having issues again. I should have listened but now my body is feeling it. What makes it extra hard is that...

It’s been a little over 4 years since I was diagnosed with lupus and sent off to the pharmacy to pick up my first prescription. I spent a lot of...

The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like lupus can mean...

Stuck, splat, and stuck like that! Have you ever felt just stuck? Stuck in a conundrum of particles that keep you from just moving freely? Like you stepped into some...

Nearly every person with lupus experiences fatigue at some point during the course of their disease. Fatigue can feel like crushing exhaustion, low-level tiredness, or even being too wiped out...

Ava has turned 1, and she has become more active than anything. She has shown me the better person that I could be. When I am sick with lupus, I...

Last year I had a terrible upper respiratory infection. A couple of days after the symptoms began I woke up with roaring tinnitus. The loud buzzing noise in my ears...

Please ask your medical professional if the Covid vaccine is suitable for you. The following is my experience under the care of my physician. Just like my first vaccine, I...

Ever felt like you have had mood swings and do not know why? You would think that would only happen during our time of the month. When I spoke to...

Finding and holding down a job can be difficult when you’re living with a chronic illness like lupus. Even after the passage of the Americans with Disabilities Act, it isn’t...

Have you ever felt at odds with wanting to fight for your life and just giving up because of all the pain? I know I have and it is a...

As with any diagnosis, lupus affects people differently. However, most people with lupus experience pain at some point. It may include pain in specific joints for some people, while others...

Dear Lupus, What is your problem? Sometimes, you try to make this life so difficult. You get on my last nerve and can bring on so much agony and pain...

Like anyone who has been diagnosed with a chronic condition, learning I had lupus was a pretty emotional time for me. I remember being bombarded with so many feelings at...

As a newly diagnosed lupus patient in my early 20s, I used to hide my prescription bottles because I was so embarrassed by clunky drugstore pillboxes. I already felt like...

We have all been there – work, school, and maintaining a household. Some things that most don’t think twice about. It is just a part of adulthood, but for us...

As lupus patients, our health can sometimes take a turn that requires immediate medical attention – which means a trip to the ER and most likely a hospital stay. Lupus...

Do you ever feel like you are in a dark place? Like you can’t crawl out of a lupus flare before another flare takes a hold on you? Do you...