My Long Road to Diagnosis
Last updated: May 2022
I started having problems when I was 26 years old.
Years of searching for the right diagnosis
I was diagnosed with fibromyalgia finally at 38. Then 6 years later I was diagnosed with Rheumatoid arthritis, during this entire time never was I tested for Lupus. The past 2 years my symptoms became more severe so 6 months ago I asked my Rheumatologist to test me for Lupus, I was officially diagnosed then.
Learning where to spend my energy
I work only part-time now, which I'm extremely fortunate that I can now, so most of my energy is spent keeping the house up, which is difficult at times and spending quality time with my grandchildren.
Have there been things you have learned along your lupus journey that you wish had been explained to you by a healthcare provider earlier?