Living

Nearly every person with lupus experiences fatigue at some point during the course of their disease. Fatigue can feel like crushing exhaustion, low-level tiredness, or even being too wiped out...

Ava has turned 1, and she has become more active than anything. She has shown me the better person that I could be. When I am sick with lupus, I...

Last year I had a terrible upper respiratory infection. A couple of days after the symptoms began I woke up with roaring tinnitus. The loud buzzing noise in my ears...

Please ask your medical professional if the Covid vaccine is suitable for you. The following is my experience under the care of my physician. Just like my first vaccine, I...

Ever felt like you have had mood swings and do not know why? You would think that would only happen during our time of the month. When I spoke to...

Finding and holding down a job can be difficult when you’re living with a chronic illness like lupus. Even after the passage of the Americans with Disabilities Act, it isn’t...

Have you ever felt at odds with wanting to fight for your life and just giving up because of all the pain? I know I have and it is a...

As with any diagnosis, lupus affects people differently. However, most people with lupus experience pain at some point. It may include pain in specific joints for some people, while others...

Dear Lupus, What is your problem? Sometimes, you try to make this life so difficult. You get on my last nerve and can bring on so much agony and pain...

Like anyone who has been diagnosed with a chronic condition, learning I had lupus was a pretty emotional time for me. I remember being bombarded with so many feelings at...

As a newly diagnosed lupus patient in my early 20s, I used to hide my prescription bottles because I was so embarrassed by clunky drugstore pillboxes. I already felt like...

We have all been there – work, school, and maintaining a household. Some things that most don’t think twice about. It is just a part of adulthood, but for us...

As lupus patients, our health can sometimes take a turn that requires immediate medical attention – which means a trip to the ER and most likely a hospital stay. Lupus...

Do you ever feel like you are in a dark place? Like you can’t crawl out of a lupus flare before another flare takes a hold on you? Do you...

At almost 30 years old, in 2016, the word disability wasn’t even in my vernacular. Sure I knew what it was. I knew a few people in my support group...

When I moved back home, I didn’t think things in the system would become even harder to deal with. I just had to make a shift in my life because...

I crave food! I crave food! I crave food all of the time! Whenever my rheumatologist and I discuss a regimen of prednisone, I find an excuse to avoid the...

Fatigue is an intense feeling that many people do not fully understand until they are living with it. Fatigue is very different from just feeling tired. When we are tired...

There are so many things that I am tired of saying because of my autoimmune disease. Most of it relates to spousal support. There have been times when people told...

Being diagnosed with lupus was probably one of most difficult moments you have had to deal with. You most likely had a whirlwind of emotions and negative thoughts. In all...