By the Numbers
Last updated: May 2022
I have developed a system to help my family understand how I am doing each day.
Using the pain scale
I have the traditional 1-10 pain scale, but a physician's assistant I used to see actually went in and put an example of what that number means. I post the number on a whiteboard in my kitchen and in a text to my family so they can tell what I may or may not feel up to each day. The number is always subject to change, as I can go from a 9 in the morning to a 3 in the afternoon as the meds kick in, or vice versa.
How do you let your loved ones know how you are feeling?
How are you most likely to respond when someone offers you unsolicited advice about your lupus?