Living

Social media has become a great outlet for me to improve helping others living with lupus. I was able to reach so many individuals that I could relate to. Without...

For the most part, lupus is an invisible illness. Most people can’t see the aching joints and fatigue that we live with every day. Lupus can change our appearance over...

When you live with chronic illness or illnesses, a possible admission to the hospital is something we expect. Those who have spent any time in the hospital. Even one night...

Losing my hair was one of the first symptoms I noticed when I began to get sick. When I brushed my hair, more strands than usual remained in the bristles...

I had the opportunity to speak to a former colleague a few months about my 8 years as a law clerk for Judge Brenda Cole State Court of Fulton County...

The laceration on my leg was ridiculous. So lately I have been getting sick and I do not know if it is because my immune system has dropped and my...

What do you do when you can’t stop sitting through uncomfortable chaotic knots? When you feel stuck and confused, have you been able to pull yourself out of that pit...

So, did you know that smoking tobacco makes your lupus much worse? Smoking tobacco with lupus can lead to infections such as respiratory issues and bronchitis. Secondhand smoke can be...

When my lupus symptoms first started to appear pre-diagnosis I recall the first health issues I had were to do with my stomach and bowel. I was diagnosed with pernicious...

Unfortunately, hospital stays can be a normal part of living with lupus. Random pains and issues have to be taken seriously and it could take a trip to the emergency...

Everyone knows the feeling of being sad, disappointed, or stressed. These feelings are normal, especially after a negative experience like a falling out with a family member or the loss...

I received the COVID vaccine, you guys. Let me tell you how! The first thing I did was make 3 different appointments because I have always been either late to...

Beach, mountains, Europe, the Caribbean, or grandma’s house. Each year, if we are fortunate, we are given the opportunity to vacation. There are so many in the lupus warriors who...

I really do not like virtual visits and I have plenty of reasons why. When a doctor is noticing and evaluating me, I feel like they should see me in...

Filing for disability is a process that you truly can’t understand unless you've been there. It’s necessary, but it's a journey. When you are doing your research it doesn’t look...

As I maneuvered my car past the line of people trailing into the hospital, I felt a sense of deja vu. Same hospital. Same parking lot. Same signs directing patients...

I started to get signals that my body was having issues again. I should have listened but now my body is feeling it. What makes it extra hard is that...

It’s been a little over 4 years since I was diagnosed with lupus and sent off to the pharmacy to pick up my first prescription. I spent a lot of...

The Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like lupus can mean...

Stuck, splat, and stuck like that! Have you ever felt just stuck? Stuck in a conundrum of particles that keep you from just moving freely? Like you stepped into some...