Living

It’s hard to change your mindset when you are dealing with pain every day. It becomes a task that can sometimes feel impossible. Every day we work to stay positive...

With a lupus diagnosis comes life changes. Sometimes these changes come in the form of pills that we have to take for the rest of our lives. For others, a...

UPDATE: The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like lupus. Often...

Someone told me that I disgust them. Someone told me that I should kill myself. Someone asked me, why I would bring a child into the world knowing that I...

Content note: This article describes experiences with self-harm. If you or a loved one are struggling, consider reading our mental health resources. --- This is the continuation of "Lupus, Depression...

Between joint pain, fatigue, and sun sensitivity, it can be difficult for people living with lupus to find the right type of exercise for them. While some people with lupus...

Being an advocate, you must watch out for a lot of things. Let me teach you one. Now you have modern-day phishing, and it is so bad because of the...

Lupus might impact your skin, joints, or kidneys. But living with a long-term chronic illness forever impacts your mindset. In many ways, adjusting to life with lupus can feel like...

In "What Is In My Hospital Bag – The Basics, Part 1" we discussed the bare minimum of what you would want to take in your hospital bag. Basically, the only...

Do you have problems saying no? Does setting boundaries for yourself and others create stress that creates flares? Sometimes, we can all get caught up in taking on more than...

I decided to interview my husband to learn someone else's opinion of me and to know the support I have. Nothing really changes, everything is really the same. I just...

Content note: This article describes experiences with self-harm. If you or a loved one are struggling, consider reading our mental health resources. --- I wanted to write about a sensitive...

Have you ever had someone try to give you advice about lupus? Has anyone said to you, “You should use this product to cure your lupus?” Maybe they said, “Just...

Editor’s note: Content warning – This article includes experiences with self-harm and suicidal thoughts and behavior. What should people with lupus know when they feel like they’ve tried everything in...

Insomnia and night terrors can be the worst things to experience. Also, I suffer from sleep paralysis a lot. When I was a child, I would have the most horrific...

Four years after I was diagnosed with lupus, I stood up from my desk one afternoon and forgot how to walk. My feet and legs didn't hurt; they just remained...

How many times have you had to be rushed to the emergency room due to a lupus situation? You aren’t feeling well and as usual, lupus strikes out of the...

Being in school can be really overwhelming because of the time I get to do the homework and classwork with being a mother. Today I found myself in complete pain...

When we are growing up it is fun to sit and think about what the future will look like. We think about who we will marry, the job/career we will...