Living

Sometimes it's not that easy to walk around with an autoimmune disease in the world because no one understands. Just recently, this beautiful woman and I had an intellectual conversation...

The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be physically and mentally exhausting. What types of media...

When I was at my sickest with lupus cerebritis, my mother-in-law, who had moved in to take care of me, introduced me to thrifting. My Other Mother, as I call...

I’ve always been interested as to why there is such a higher ratio of women who get diagnosed with lupus than men. Research suggests that 1 in 10 people living...

I've been looking for my glasses while they were on my face. Searching high and low for my phone as I was talking on it. The scary moments when I...

Getting diagnosed with lupus has changed my life forever. There is so much I wish I could do that I can't or won't (do as frequently) just because it could...

Still haven’t found a creative outlet? Here are more ideas to try! (Energy Level: Moderate) When I was a young child, my mother used to sew dresses and jumpers for...

I have previously written about the effects depression can have on us lupies but I wanted to talk about another aspect of mental health that can also affect us. It...

I've always been a Type A, goal-oriented person. In the weeks leading up to New Year's Day every year, I research the best type of planner, then fill it with...

"I cannot walk out of the house this sick." Though fully vaccinated and being personally vigilant about COVID precautions in my home, I had a single weak link in my...

Many things can affect whether a person gets lupus or not. Other health conditions are among them. One condition that can increase the risk of lupus is post-traumatic stress disorder...

I'm pacing around the house, saying, "will they call?" My family keeps calling to check on the status of my interviews. "Should I have told that many people? What if...

Approximately 1 year ago, I had to pause the first immunosuppressant I’ve ever taken for lupus: azathioprine. After 3 years on that medication, a specialist told me it was doing...

When you have lupus, it can sometimes feel like you are just surviving instead of living. Making time for creativity can help relieve stress and add some joy to your...

One of the most difficult aspects of my journey with lupus is keeping track of my symptoms and communicating them to my doctor. Because of that, I keep a variety...

Getting a diagnosis of an autoimmune disease like thyroid eye disease (TED) can leave you with some unanswered questions. Your doctor will likely tell you that the disease does not...

Dealing with lupus or any chronic illness is difficult and can be even more difficult without the proper support team. There is not enough credit in the day to say...