Self-Care and LupusThe World Health Organization defines self-care as: "the ability of individuals, families, and communities to promote health, prevent disease, maintain health, and...reactions3comments
Becoming a WarriorFor at least three years, I had been experiencing the strangest sensations – like my nerves were on fire and my joints...reactions3comments
I Have Lupus. Lupus Doesn't Have Me.In 1996 my freshman year of college I was given the word Lupus to title all the rashes aches pains hair loss...reactions1comment
Lupus Changed My Life... For Good!Surprisingly, being diagnosed with lupus (and fibromyalgia) in my early 30s changed my life and opened the world. It created a pathway...reactionscomments
Lupus warriorMy name is Kendra and I got lupus when I was 11 years old I am in remission now but still have...reactionscomments
How I Beat Post-Exertional FatigueA month ago, I decided to change up my workout routine. Instead of my usual Pilates and light weight-lifting, I searched YouTube...reactions5comments
Lupus Awareness Month 2022: Self-Care MattersMay is Lupus Awareness Month! While awareness is not limited to one month, all of May we will be sharing stories, starting...reactions2comments
Smoldering Myeloma, MGUS and LupusI've had SLE lupus since 1999 and received the news that I have MGUS (monoclonal gammopathy of undetermined significance) on 6/6/2017. When...reactions1comment
My Experience With Digestive Issues and LupusAs we all know, our lupus symptoms can vary so much and will effect us all differently. I have found that it...reactions16comments
Poem: "Lupus Is Not a Disease That You See"Lupus is not a disease that you see. It reminds you it’s there like an ‘invisible enemy'. It ravages your body in...reactions12comments
My Long Road to DiagnosisI started having problems when I was 26 years old. I was diagnosed with fibromyalgia finally at 38. Then 6 years later...reactions3comments
Lupus.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on LUPUS.NET, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
The Trials and Tribulations of InfectionWhat do you do when contagions are all around you? During this pandemic, the phrase, "wash your hands," reminded me of my...reactions2comments
Who Inspires Me?There are plenty of people with lupus who inspire me. One person I admire and am truly inspired by the most is...reactions4comments
Giving My AllI was found out I had Lupus Nephritis in 2015. Since then I have had my ups and downs. This year has...reactions1comment
Steroid Rage and Pain ManagementI have a few problems with steroids. Let's be honest, who doesn't? I've never heard of someone having a flawless relationship with...reactions7comments
What to Do if You Are Misdiagnosed or UndiagnosedSome people collect coins, stamps, or rocks. Most lupus patients collect misdiagnoses, unfortunately against our will. By the time I was finally...reactions2comments
Using Your Love Language to Cope with LupusIt can be hard to work on self-care for yourself in between pain and life. Self-care is anything that will make your...reactions7comments
Life After the Pandemic Mandates are Lifted as a Lupus PatientI know tons of people are sick of hearing COVID all over the news and are now rejoicing that the mask mandates...reactions1comment
Blindsided by Lupus and Autoimmune DiseasesI was diagnosed with SLE Lupus 15 years ago. Since then, I have been diagnosed with Fibromyalgia, Sjogrens, Raynauds and this past...reactions6comments
