How I Beat Post-Exertional FatigueA month ago, I decided to change up my workout routine. Instead of my usual Pilates and light weight-lifting, I searched YouTube for workout videos and stumbled upon a beginner...Reactions0reactionsComments5 comments
Soothing Self-Care Basket GiveawayThe Soothing Self-care Basket Giveaway is now closed. Thank you for your interest! To support 2 lucky community members in their lupus journey toward soothing self-care, we are giving away:...Reactions0reactionsComments0 comments
Lupus Awareness Month 2022: Self-Care MattersMay is Lupus Awareness Month! While awareness is not limited to one month, all of May we will be sharing stories, starting conversations, and highlighting the importance of self-care for...Reactions0reactionsComments2 comments
Smoldering Myeloma, MGUS and LupusI've had SLE lupus since 1999 and received the news that I have MGUS (monoclonal gammopathy of undetermined significance) on 6/6/2017. When I read your feature story, I was glad...Reactions0reactionsComments1 comments
My Experience With Digestive Issues and LupusAs we all know, our lupus symptoms can vary so much and will effect us all differently. I have found that it has played havoc with my digestive system over...Reactions0reactionsComments14 comments
Poem: "Lupus Is Not a Disease That You See"Lupus is not a disease that you see. It reminds you it’s there like an ‘invisible enemy'. It ravages your body in ways you can never explain. A winding river...Reactions0reactionsComments12 comments
My Long Road to DiagnosisI started having problems when I was 26 years old. I was diagnosed with fibromyalgia finally at 38. Then 6 years later I was diagnosed with Rheumatoid arthritis, during this...Reactions0reactionsComments3 comments
Lupus.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on LUPUS.NET, a Health Union ("Health Union" or "We") owned and operated website. For conflicts between the Promotional giveaway article...Reactions0reactionsComments0 comments
The Trials and Tribulations of InfectionWhat do you do when contagions are all around you? During this pandemic, the phrase, "wash your hands," reminded me of my mother helping me wash at the bathroom sink...Reactions0reactionsComments2 comments
Who Inspires Me?There are plenty of people with lupus who inspire me. One person I admire and am truly inspired by the most is Toni Braxton. Why? She has had lupus for...Reactions0reactionsComments4 comments
Giving My AllI was found out I had Lupus Nephritis in 2015. Since then I have had my ups and downs. This year has been my worst, or maybe I am just...Reactions0reactionsComments1 comments
Steroid Rage and Pain ManagementI have a few problems with steroids. Let's be honest, who doesn't? I've never heard of someone having a flawless relationship with steroids. My biggest issue with them is roid...Reactions0reactionsComments7 comments
What to Do if You Are Misdiagnosed or UndiagnosedSome people collect coins, stamps, or rocks. Most lupus patients collect misdiagnoses, unfortunately against our will. By the time I was finally diagnosed with lupus at age 22, I had...Reactions0reactionsComments2 comments
Using Your Love Language to Cope with LupusIt can be hard to work on self-care for yourself in between pain and life. Self-care is anything that will make your life better and meet your needs. After reading...Reactions0reactionsComments7 comments
Life After the Pandemic Mandates are Lifted as a Lupus PatientI know tons of people are sick of hearing COVID all over the news and are now rejoicing that the mask mandates and vaccine mandates have been lifted in most...Reactions0reactionsComments1 comments
Blindsided by Lupus and Autoimmune DiseasesI was diagnosed with SLE Lupus 15 years ago. Since then, I have been diagnosed with Fibromyalgia, Sjogrens, Raynauds and this past November, tests showed my Thyroid is having problems...Reactions0reactionsComments6 comments
Lupus and RelationshipsI wanted to talk about relationships in my latest article, as I feel it is something that can have a huge impact on lupus patients. I have experienced both ends...Reactions0reactionsComments1 comments
How I Handle Housework With LupusLike many lupus patients, I don't have as much energy as a healthy person my age. I sleep 10-12 hours a night yet still feel tired every day. Between balancing...Reactions0reactionsComments4 comments
3 Things that Saved My Sanity and My LifeOne of the drawbacks of being chronically ill is the sheer number of doctors you have to see to manage your care. That alone can make anyone feel lost and...Reactions0reactionsComments4 comments
What Lupus Actually Looks LikeOftentimes people who do not have lupus think they know what lupus is. They may know a friend of a friend that has lupus. They base their view on just...Reactions0reactionsComments2 comments
