From Feeling Unheard to Setting Up a Support GroupIn the early days of having lupus, it was a constant struggle for me just to be heard. This included health professionals...reactionscomments
My Breast Cancer ScareI recently noticed some changes on my right breast. Of course, as soon as I noticed this, my heart sank and my...reactions2comments
Age of Lupus Symptom Onset vs. DiagnosisNot only do symptoms of lupus vary widely, so does the length of time that symptoms stay present. Symptoms such as brain...reactionscomments
The Unlikely Story of a Lucky Diagnosis, Part 2Editor’s note: This is the second article in a 2-part series. The first is “The Unlikely Story of a Lucky Diagnosis, Part...reactions1comment
Digestive System and LupusI have had issues with my digestive system plenty of times. I have had something called gastritis. Gastritis is inflammation of the...reactionscomments
Migratory Joint Pain, Curbing the Pain, and a Potential FlareAll my joint problems, pain, or inflammation, have always been "migratory." This type of joint pain occurs with inflammation spreading from one...reactions2comments
Retaining FluidMost people don’t know or will not understand how fluid retention starts, and also how you retain fluid. Well, my experiences have...reactions1comment
Dealing With JealousyThey say jealousy is the green-eyed monster. Which is pretty much correct. However it is a NORMAL human reaction/feeling. So why am I...reactions2comments
Cruel Judgement From DoctorsSometimes it’s good to talk to your doctors if they will take the time to understand your story. In the past, I've...reactions2comments
Dear Lupus, I Want Myself BackMy personal balance between patient and person has been going in the wrong direction lately. I’ve never felt like the balance was...reactionscomments
The ABCs of LupusIt’s hard living with lupus. It takes patience and understanding. I love words and I had to learn to talk to myself...reactions9comments
When Your Medical Team Keeps GrowingI can barely keep track of my doctors anymore. I know the important ones, of course, like my primary care and rheumatologist...reactionscomments
I Was Told Lupus Was a Woman's DiseaseI was diagnosed with systemic lupus and lupus nephritis in 1995. I had no idea what lupus was nor had I ever...reactions13comments
Lupus and the UnknownAfter I had COVID, I noticed that the right side of my face was a bit swollen. I informed my rheumatologist about...reactions4comments
When the Patient Becomes the CaregiverEarlier this year, one of my favorite songs, Ironic by Alanis Morrissette, became my reality. I was sitting in my home office...reactions1comment
Am I a Good Caregiver?With my mother having lupus, there have undoubtedly been times where I have had to step more into a caregiver role than...reactions1comment
My Experience With The Heart Complication, PericarditisHeart problems can be a big situation when it comes to having lupus. I was diagnosed with pericarditis. Pericarditis is the inflammation...reactions2comments
Healthy Cooking Hacks for When You Are ExhaustedFor most of us with lupus, chronic fatigue is unfortunately here to stay. My own chronic fatigue makes it especially difficult to...reactions11comments
Travel Tips For Lupus PatientsTraveling can be really stressful. But, traveling during the pandemic with lupus or any other chronic illness just adds another layer of...reactionscomments
9 Tips For Traveling Overseas With LupusTraveling overseas with lupus or any other chronic illness can be daunting. However, I believe we shouldn’t have to miss out on...reactions3comments
