Lupus Is Killing MeI was officially diagnosed only about a year ago. My Mother-RIP-also suffered & lost her battle with this devastating disease. I believe...reactions6comments
By the NumbersI have developed a system to help my family understand how I am doing each day. I have the traditional 1-10 pain...reactions1comment
Gotta Keep FightingI was diagnosed when I was 24, at the time my daughters were 3 and 5. I didn't know what was wrong...reactions3comments
Lupus Changed How I Saw MyselfI was diagnosed with Lupus when I was 21. I had a grand mal seizure and thought it was epilepsy. I didn't...reactions7comments
Missed ChancesJust read about the Glandular fever virus connection, I had it at 14, that's 50 years ago. It's incredible isn't it, I...reactions2comments
What Lupus Has Taught MeLupus, what have you taught me? You've taught me compassion, not to judge anyone, that many suffer in silence - behind a...reactions2comments
Managing with LupusAfter living with Lupus symptoms for years and being diagnosed 2 years ago. I have learned to get at least 10 hours...reactions3comments
My Diagnosis Was an Unexpected SurpriseLast year, I decided to make an appointment with the neurologist due to having more than usual nerve pain, especially in my...reactions1comment
22 Years and Still Counting...22 years ago I finally got my diagnosis but for over 25 years I had experienced symptoms. I had been dismissed by...reactions3comments
LupiesI was diagnosed with SLE about 6 years ago. I didn't think anything of it because I was never educated by my...reactions1comment
This Lupie LifeI was diagnosed with Lupus in 2014. To say it was a game-changer is putting it mildly. I'm glad I found out...reactions3comments
5 Things I Learned From My First Surgery as an Autoimmune PatientHave you had surgery before? Until a few weeks ago, my answer was simply that I had my wisdom teeth removed as...reactions20comments
Becoming a Lupus WarriorI was practicing some self-care last summer when I started sweating and felt out of breath and passed out in the spa...reactionscomments
My Lupus ExperienceMy name is Amanda, I am 36 years old and this is my story. I had my first autoimmune disorder at the...reactionscomments
Are You Self-Gaslighting on Your Lupus Journey?Living with this chronic pain always has me questioning my body on my lupus journey. The chronic nature makes me more aware...reactions12comments
So I'm Not a Hypochondriac...About 6 years ago I went to my GP with a rash across my neck and other ongoing symptoms. He asked me...reactionscomments
Therapy Is Not ScaryTherapy. The thought of going to talk to a stranger about your deepest darkest issues and traumas is daunting at best. But...reactions6comments
Showing Lupus Who the Boss IsI was in my early 30's when I was diagnosed. I'm married, I was raising 2 small boys and the doctor told...reactionscomments
Lupie LifeI've had Lupus since I was 8 and now I'm 47. I've been in and out of hospitals. I'm so blessed I...reactionscomments
Me, Myself & LupusHi, my name is Sandy. I have been diagnosed with lupus going on almost 4 years now. Let me tell you, at...reactions1comment