I Feel Exposed: Being Chronically DryOne! Two! Three layers of lotion on my boy every morning. My friend Melissa and Ben always laughed as they watched me lather lotion on my face as if it...reactions13comments
Lupus Symptom BingoLupus can leave some people feeling out of control. You might experience flare-ups when symptoms worsen and other times when lupus symptoms are mild. This symptom bingo card is a...reactions14comments
My Lupus JourneyI was diagnosed with lupus in 1997 I am now 65 yrs old. Through the years I could cope very well with my condition. I held a job very well...reactions1comment
Show Up for Yourself on Your Lupus JourneyOften, on our lupus journey, we forget about ourselves. We give so much to everyone in our lives. We are ultimately neglecting our own needs and desires. It's true. We...reactions2comments
My Eyes Are Open Now!I have been a very healthy person until 5 years ago. I began to think my doctor just got tired of hearing the same old whining from me. Just within...reactions8comments
Flawed with Lupus💜I was diagnosed almost five years ago. My life changed slowly but surely. I had chronic infections, unexplained body pain, and abnormal labs. After my Lupus diagnosis, my treatments were...reactions2comments
Accepting I Have a DisabilityWhen I think of the word "disability," I often think of the universal symbol for disability: a simple blue picture of a person sitting in a wheelchair. Wheelchairs and other...reactions4comments
Beauty In LightIt’s just so nice to finally not be told by doctors I am making up all of these symptoms. After years of being dismissed and not taken seriously, I am...reactions2comments
My Lupus StruggleI've had Lupus since 1989. I lost a baby because of it. That's when I found out I had Lupus. I've had quite a few flares. In 2020, I had...reactions1comment
Fighting for AnswersIt's been 26 years since I was first told I might have lupus, and I still don't have a definite diagnosis. Because I have periods where I am fine, people...reactions7comments
Lupus Advocacy: The Honest TruthAdvocacy for lupus can be overwhelming. Dealing with other people’s issues while battling your own can lead to advocacy burnout. Life as a lupus advocate is not easy. It is...reactions2comments
The Never-Ending StruggleI was diagnosed in 1998, but managed well and had few flares. As time has gone on, it has gotten worse. It took my nursing job, my mobility (in a...reactions1comment
What I Learned From Lupus Advocates During Our Instagram Live EventI am continuously impressed by my fellow advocates here on Lupus.net. I enjoy reading their articles, and I'm encouraged when I learn about their life experiences with lupus. Recently, I...reactions2comments
Tired Nurse WarriorI was diagnosed in 1994, the same year I graduated from nursing school. I have been living with multi-system involvement- most recently the death of my right kidney and more...reactions3comments
Too Tired TodayI am a mom to 7 humans. Three that are under 13 years old. One has Down syndrome. He has the mind of a 3-year-old, is non-verbal, and is very...reactions2comments
Confused and ExhaustedI was adopted at 3 days old. My adoptive mother never told me any information and was quite touchy about the subject. I'm now 54 with children and grandchildren and...reactions7comments
Lupus Is Killing MeI was officially diagnosed only about a year ago. My Mother-RIP-also suffered & lost her battle with this devastating disease. I believe I have been suffering for Lupus for many...reactions6comments
By the NumbersI have developed a system to help my family understand how I am doing each day. I have the traditional 1-10 pain scale, but a physician's assistant I used to...reactions1comment
Gotta Keep FightingI was diagnosed when I was 24, at the time my daughters were 3 and 5. I didn't know what was wrong. I went to doctor after doctor trying to...reactions3comments
Lupus Changed How I Saw MyselfI was diagnosed with Lupus when I was 21. I had a grand mal seizure and thought it was epilepsy. I didn't know entirely how the disease affected the body...reactions7comments
