Antiphospholipid SyndromeAntiphospholipid antibody syndrome can be a tricky condition when it comes to dealing with lupus. Why? It occurs when your immune system mistakenly creates antibodies that make your blood much... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments5 comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Taming My She-wolf: Life with Lupus and the Holiday AftermathAnd so it begins. I could feel She-wolf (aka lupus) creeping along the edges of my life, looking for her opportunity to pounce. I ignored her, and I had way... By Cay Bermingham4 min readBookmark for laterReactions 0 reactions Comments2 comments
How To Accomplish Goals Despite LupusOne of the most painful parts of getting sick with lupus was having to let go of my goals and plans. I mourned the loss of the life I had... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments4 comments
Loving Yourself Beyond Lupus"To be beautiful means to be yourself. You don't need to be accepted by others; you need to accept yourself." –Thich Nhat Hanh It can be hard to accept and... By Racquel H. Dozier3 min readBookmark for laterReactions 0 reactions Comments8 comments
Travel Tips For Lupus PatientsTraveling can be really stressful. But, traveling during the pandemic with lupus or any other chronic illness just adds another layer of stress. Thankfully I love planning and swear I... By Geri Rodriguez4 min readBookmark for laterReactions 0 reactions Comments0 comments
How Are You Feeding Your Mind As You Battle Lupus?Lupus can really play tricks with our minds. It can have us thinking that we can't do anything in our lives. Sometimes it even hits us with anxiety and paranoia... By Racquel H. Dozier3 min readBookmark for laterReactions 0 reactions Comments7 comments
Lupus Nephritis: Now On DialysisI've had Lupus since 2005. It went into my kidneys and now I'm on dialysis. Soon I'll be looking for a Kidney Transplant. I have potential donors, the problem is... By PinkPartridge1 min readBookmark for laterReactions 0 reactions Comments3 comments
Cabin Trip Lupus Flare UpSo, I went on a trip to the cabin for my mother’s birthday. I noticed many things that my mother and I have in common dealing with our lupus. I... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments4 comments
Covid Vaccines For the ImmunocompromisedI got my 2 doses of the Pfizer vaccine in April 2021. When I became eligible for my booster shot it was during the time Omicron was all over the... By Geri Rodriguez2 min readBookmark for laterReactions 0 reactions Comments0 comments
Survey: 8 in 10 Wish They Could Have Managed Lupus DifferentlyWe all have those moments where we look back and wish we could change something from a particular moment in time. People living with lupus who took our 2nd Lupus... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments2 comments
The Fear, Joy, and Sadness of Missing OutThe concept of FOMO (the fear of missing out) has been circulating for a while and has helped many people put a name on the anxiety they may feel about... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments4 comments
What To Expect When You Take ImmunosuppressantsLupus is an autoimmune disease. This means that instead of attacking invading germs, the body's immune system attacks its own skin and organs. Often, this assault by the immune system... By Meghan Bea2 min readBookmark for laterReactions 0 reactions Comments6 comments
About 6 in 10 Lupus Patients Constantly Have to Explain the ConditionIt can be frustrating to explain lupus over and over again to people who simply do not understand. This can lead to simplified answers to save time and energy. Our... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Restless Legs Syndrome and the Lupus LinkI must've lost count of the list of symptoms that lupus has given me. I often feel like some of them have a cycle. I can be experiencing pain in... By Charlotte Barnett2 min readBookmark for laterReactions 0 reactions Comments4 comments
My COVID Booster Shot Experience with LupusAfter the move to Atlanta, I finally met up with a primary doctor. I am completely in love with medical centers like Jencare. When I went there, they did a... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments0 comments
Lupus Lies to Protect Your PeaceHow many times have you lied about how you feel as you battle lupus? For me, I can't even count the number of times I've stretched the truth. I haven't... By Racquel H. Dozier3 min readBookmark for laterReactions 0 reactions Comments6 comments
Getting Sick While on a BiologicHave you ever had that "whoa" moment when a doctor prescribes a medication? As in, "whoa, this medication has some scary warnings!" Sometimes I don't know what's scarier: waiting years... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments0 comments
How Lupus Indirectly Caused My Divorce"In sickness and in more sickness," my then-fiance and I joked in the months leading up to our wedding ceremony. We had dated 7 years before getting engaged. Three of... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments6 comments
The Metamorphosis of a Workaholic LupieNot me! I did not take it well when my extremely compassionate and thorough rheumatologist said: "Have you considered retiring?" My mind began to race… 'She can not be talking... By Cay Bermingham3 min readBookmark for laterReactions 0 reactions Comments6 comments