What Lupus Has Taught MeLupus, what have you taught me? You've taught me compassion, not to judge anyone, that many suffer in silence - behind a smile while inside they are dying. That the...Reactions0reactionsComments2 comments
Managing with LupusAfter living with Lupus symptoms for years and being diagnosed 2 years ago. I have learned to get at least 10 hours of sleep per night. I take my hydroxychloroquine...Reactions0reactionsComments3 comments
My Diagnosis Was an Unexpected SurpriseLast year, I decided to make an appointment with the neurologist due to having more than usual nerve pain, especially in my feet and both hands and arms. But the...Reactions0reactionsComments1 comments
22 Years and Still Counting...22 years ago I finally got my diagnosis but for over 25 years I had experienced symptoms. I had been dismissed by so many doctors. I began to think it...Reactions0reactionsComments3 comments
LupiesI was diagnosed with SLE about 6 years ago. I didn't think anything of it because I was never educated by my doctors about what was actually going on in...Reactions0reactionsComments1 comments
This Lupie LifeI was diagnosed with Lupus in 2014. To say it was a game-changer is putting it mildly. I'm glad I found out later in life, or I would really be...Reactions0reactionsComments3 comments
5 Things I Learned From My First Surgery as an Autoimmune PatientHave you had surgery before? Until a few weeks ago, my answer was simply that I had my wisdom teeth removed as a teenager. Sure, that was technically surgery, but...Reactions0reactionsComments20 comments
Becoming a Lupus WarriorI was practicing some self-care last summer when I started sweating and felt out of breath and passed out in the spa chair of the nail shop. I woke up...Reactions0reactionsComments0 comments
My Lupus ExperienceMy name is Amanda, I am 36 years old and this is my story. I had my first autoimmune disorder at the age of 18 months old, I started with...Reactions0reactionsComments0 comments
Are You Self-Gaslighting on Your Lupus Journey?Living with this chronic pain always has me questioning my body on my lupus journey. The chronic nature makes me more aware of every pain. I often find myself minimizing...Reactions0reactionsComments11 comments
So I'm Not a Hypochondriac...About 6 years ago I went to my GP with a rash across my neck and other ongoing symptoms. He asked me what I did for a job and when...Reactions0reactionsComments0 comments
Therapy Is Not ScaryTherapy. The thought of going to talk to a stranger about your deepest darkest issues and traumas is daunting at best. But it is honestly so good and so therapeutic...Reactions0reactionsComments6 comments
Showing Lupus Who the Boss IsI was in my early 30's when I was diagnosed. I'm married, I was raising 2 small boys and the doctor told me I had 5 years to live. After...Reactions0reactionsComments0 comments
Lupie LifeI've had Lupus since I was 8 and now I'm 47. I've been in and out of hospitals. I'm so blessed I was able to have one child. I have...Reactions0reactionsComments0 comments
Me, Myself & LupusHi, my name is Sandy. I have been diagnosed with lupus going on almost 4 years now. Let me tell you, at 1st I was angry & disappointed with the...Reactions0reactionsComments1 comments
Self-Care and LupusThe World Health Organization defines self-care as: "the ability of individuals, families, and communities to promote health, prevent disease, maintain health, and cope with illness and disability with or without...Reactions0reactionsComments3 comments
Becoming a WarriorFor at least three years, I had been experiencing the strangest sensations – like my nerves were on fire and my joints were so inflamed that my hands would sometimes...Reactions0reactionsComments3 comments
I Have Lupus. Lupus Doesn't Have Me.In 1996 my freshman year of college I was given the word Lupus to title all the rashes aches pains hair loss fatigue. I had no place to put this...Reactions0reactionsComments1 comments
Lupus Changed My Life... For Good!Surprisingly, being diagnosed with lupus (and fibromyalgia) in my early 30s changed my life and opened the world. It created a pathway to find more joy in my life and...Reactions0reactionsComments0 comments
Lupus warriorMy name is Kendra and I got lupus when I was 11 years old I am in remission now but still have my ups and downs but I fight it...Reactions0reactionsComments0 comments
