Living

I was diagnosed with lupus in 1997 I am now 65 yrs old. Through the years I could cope very well with my condition. I held a job very well...

I have been a very healthy person until 5 years ago. I began to think my doctor just got tired of hearing the same old whining from me. Just within...

I was diagnosed almost five years ago. My life changed slowly but surely. I had chronic infections, unexplained body pain, and abnormal labs. After my Lupus diagnosis, my treatments were...

It’s just so nice to finally not be told by doctors I am making up all of these symptoms. After years of being dismissed and not taken seriously, I am...

I've had Lupus since 1989. I lost a baby because of it. That's when I found out I had Lupus. I've had quite a few flares. In 2020, I had...

It's been 26 years since I was first told I might have lupus, and I still don't have a definite diagnosis. Because I have periods where I am fine, people...

I was diagnosed in 1998, but managed well and had few flares. As time has gone on, it has gotten worse. It took my nursing job, my mobility (in a...

I was diagnosed in 1994, the same year I graduated from nursing school. I have been living with multi-system involvement- most recently the death of my right kidney and more...

I am a mom to 7 humans. Three that are under 13 years old. One has Down syndrome. He has the mind of a 3-year-old, is non-verbal, and is very...

I was adopted at 3 days old. My adoptive mother never told me any information and was quite touchy about the subject. I'm now 54 with children and grandchildren and...

I was officially diagnosed only about a year ago. My Mother-RIP-also suffered & lost her battle with this devastating disease. I believe I have been suffering for Lupus for many...

I have developed a system to help my family understand how I am doing each day. I have the traditional 1-10 pain scale, but a physician's assistant I used to...

I was diagnosed when I was 24, at the time my daughters were 3 and 5. I didn't know what was wrong. I went to doctor after doctor trying to...

I was diagnosed with Lupus when I was 21. I had a grand mal seizure and thought it was epilepsy. I didn't know entirely how the disease affected the body...

Just read about the Glandular fever virus connection, I had it at 14, that's 50 years ago. It's incredible isn't it, I directly asked my Rheumatologist (who also now claims...

Lupus, what have you taught me? You've taught me compassion, not to judge anyone, that many suffer in silence - behind a smile while inside they are dying. That the...