My Deep Vein Thrombosis ScareI wanted to write about an experience I had recently, which at the time was very frightening, and it made me think a...reactions3comments
My 5-Year Lupus Diagnosis AnniversaryI cannot believe it’s been 5 years since I officially got my diagnosis. My lupus journey has been an emotional roller coaster...reactions2comments
The Stigma of Explaining Lupus to OthersThe stigma of explaining lupus to others can be very hard. Why? Because lupus is considered not a serious condition. Most people...reactions5comments
Has Your Doctor Ever Gaslit You?"You're too young to be sick." "There's nothing physically wrong with you. You're depressed." "You're tired because you live far away from...reactions11comments
2 Ways of Explaining Lupus Fatigue to Others"I have chronic fatigue, but that doesn't necessarily mean that I'm tired 100 percent of the time," I explained to a new...reactions7comments
Finding a Job With LupusTimes have changed! I do not know if it is for the better or worse. I currently sit and try to apply...reactions1comment
Getting Surgery for My Breast LumpMy appointment with the breast surgeon took forever to come. She was booked solid, and the earliest time to see her was...reactionscomments
Tips for a Vacation with Kids and LupusYears ago, I heard someone say that going on vacation is just going out to eat in different cities. I disagreed with...reactionscomments
Headaches and LupusOne of my main recurring symptoms of lupus is headaches. I seem to constantly go through phases where I get different types...reactions7comments
Write a Personalized Letter to CongressFor our community members in the United States, one meaningful way to start the conversation surrounding lupus awareness is to write a...reactionscomments
Money Woes and LupusIt's gotten so hard these days to look at my bank account. With the rising cost of everything, living in NYC plus...reactions2comments
World Changes Impact the Lives of the Lupus CommunityDetermine your strength to get you through the moments that feel the toughest. Always advocate for yourself, for better or worse, within...reactionscomments
An Interview With a Registered Nurse About Treating Chronically Ill PatientsWhen I first met my sister-in-law Allison in 2012, I was impressed to hear she was a nurse. I always wanted to...reactions2comments
Red FaceI had a horrible experience the other evening. My entire face turned red and hot and hurt like hell. I would give...reactions7comments
Mother of Eight with LupusMy Mother passed away with lupus, My Grandfather also had lupus. Now I have lupus. I'm glad it skipped my children and...reactions1comment
Summertime with Discoid LupusSummertime is not my favorite time of the year. This is always the worst time for me due to the sun becoming...reactions4comments
My Experience Having Covid-19It was the day I knew would come eventually, and I dreaded it. My lateral flow test showed a very bright red...reactions3comments
The TransformationIt was historic...A huge freeze with snow in San Antonio! It didn't last a few hours, like other storms. It came and...reactions6comments
My Experience With a Maternal Fetal Medicine DoctorIt was such an ordeal when I got my lupus diagnosis. There was so much trial and error on the meds that...reactions2comments
Give Yourself Permission for Self-CompassionOn my lupus journey, I feel like I am the hardest on myself. Do you ever feel like you have to be...reactions11comments
