A Brain Inflammation Flare Made Me Forget What I Liked and DislikedIn 2014, I stood up after teaching a violin lesson one day and forgot how to walk. A severe episode of lupus cerebritis, or brain inflammation, followed and lasted for...Reactions0reactionsComments3 comments
Dealing With a Breast Lump as Lupus PatientWith lupus, you become more aware of your health. You get to know your body and know what is "normal." One day, I was doing a self-check breast and noticed...Reactions0reactionsComments9 comments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards program! The Social Health Awards is an awards...Reactions0reactionsComments2 comments
Why I Love Summer Even With LupusThe winter months are hard on me. It's cold and dark, and the weather can be formidable. While I don't have Raynaud's, like some people with lupus, I still struggle...Reactions0reactionsComments9 comments
Lupus and Personal FinanceMaking money when you are chronically ill can be a challenge. It is not easy maintaining a job while dealing with achy joints and fatigue. It can also be difficult...Reactions0reactionsComments7 comments
Thomas the Train & Lupus the PainEvery day I tell myself "I think I can." I am now 62 and was diagnosed with lupus 28 years ago. I've seen on here a number of stories from...Reactions0reactionsComments4 comments
Words I Invented for Fatigue Because the English Language is InadequateWhen I first got sick with lupus, I was not a stranger to feeling tired. Throughout high school and college, I had spent many late nights studying or practicing the...Reactions0reactionsComments10 comments
Discrimination May Mean Life and Death: Being a Gay Man with LupusStruggling to fight bias is a common theme as a black gay man living with lupus. I was a shy teen, but lupus brought me out of my shell. Somehow...Reactions0reactionsComments8 comments
Lupus, Pregnancy, and MotherhoodGrowing up, I knew I wanted to be a mom. But, with my lupus diagnosis, my dreams of starting a family were put on hold. I was only 27 when...Reactions0reactionsComments2 comments
Medical GaslightingGetting any type of diagnosis can be hard, but it's even harder when symptoms cannot be visibly seen but only felt by the patient. Sadly this is more common than...Reactions0reactionsComments37 comments
Here Comes the Sun and Big FlaresI went outside to feel the sun on my face. The energy from its rays was magnificent. The way the sun felt on my face was warm and comforting. I bathed...Reactions0reactionsComments15 comments
I Was Misdiagnosed 7 TimesThe first time I saw a doctor about my chronic illness, I was 22. I had just finished my first semester of graduate school. For months, my hair had clogged...Reactions0reactionsComments8 comments
Was There a “Before Lupus” Version of Me?For a long time, I saw myself as either "before" or "after" when it came to lupus. There was before the diagnosis in 2017 and then afterward. There was also...Reactions0reactionsComments6 comments
Finding Ways to Control Lupus SymptomsThis is a very intense topic to talk about. I have a lot of followers on Instagram that always ask about symptom control or the lack thereof. Their first thought...Reactions0reactionsComments1 comments
Lupus and Mask-ShamingIt's been over 2 years since the start of the pandemic, and the world is starting to get back to normalcy. Restaurants, schools, airlines, and many more places have lifted...Reactions0reactionsComments6 comments
The Sun, Lupus and MeI loved being outside soaking up the sun. Feeling the warmth go through my body. I was very young when I was diagnosed with Lupus. I was 8. It has...Reactions0reactionsComments8 comments
Journey to the UnknownI was at work and thought I was having a heart attack. I went to Doctor's Care and they called for an ambulance b/c of my EKG readings. I was...Reactions0reactionsComments1 comments
The Long HaulI am now 68 years old and have suffered through Lupus for 20 years. Thankfully I was able to find a wonderful rheumatologist. When my insurance changed I changed my...Reactions0reactionsComments2 comments
Jen's LifeWell, the more I read I wonder how long I have really had lupus... Back in the day I had 3 stillborn babies. Fast forward, I was diagnosed with fibromyalgia...Reactions0reactionsComments3 comments
I Feel Exposed: Being Chronically DryOne! Two! Three layers of lotion on my boy every morning. My friend Melissa and Ben always laughed as they watched me lather lotion on my face as if it...Reactions0reactionsComments13 comments