2 Ways of Explaining Lupus Fatigue to Others"I have chronic fatigue, but that doesn't necessarily mean that I'm tired 100 percent of the time," I explained to a new friend over dinner. He nodded, then looked confused...Reactions0reactionsComments5 comments
Finding a Job With LupusTimes have changed! I do not know if it is for the better or worse. I currently sit and try to apply for job applications, and lupus is now mentioned...Reactions0reactionsComments1 comments
Getting Surgery for My Breast LumpMy appointment with the breast surgeon took forever to come. She was booked solid, and the earliest time to see her was in April. It was now a couple of...Reactions0reactionsComments0 comments
Tips for a Vacation with Kids and LupusYears ago, I heard someone say that going on vacation is just going out to eat in different cities. I disagreed with them for many reasons, but mainly because I...Reactions0reactionsComments0 comments
Headaches and LupusOne of my main recurring symptoms of lupus is headaches. I seem to constantly go through phases where I get different types of them, but most days, I find that...Reactions0reactionsComments7 comments
Write a Personalized Letter to CongressFor our community members in the United States, one meaningful way to start the conversation surrounding lupus awareness is to write a letter to your federal legislators. These legislators represent...Reactions0reactionsComments0 comments
Money Woes and LupusIt's gotten so hard these days to look at my bank account. With the rising cost of everything, living in NYC plus doctors visits, medications, lab work, etc. It's really...Reactions0reactionsComments2 comments
World Changes Impact the Lives of the Lupus CommunityDetermine your strength to get you through the moments that feel the toughest. Always advocate for yourself, for better or worse, within the hospital. Roe vs. Wade was overturned, and...Reactions0reactionsComments0 comments
An Interview With a Registered Nurse About Treating Chronically Ill PatientsWhen I first met my sister-in-law Allison in 2012, I was impressed to hear she was a nurse. I always wanted to hear about her job and respected her for...Reactions0reactionsComments2 comments
Red FaceI had a horrible experience the other evening. My entire face turned red and hot and hurt like hell. I would give my pain a 10. It lasted for hours...Reactions0reactionsComments7 comments
Mother of Eight with LupusMy Mother passed away with lupus, My Grandfather also had lupus. Now I have lupus. I'm glad it skipped my children and grandchildren. I've been diagnosed since 2005 and out...Reactions0reactionsComments1 comments
Summertime with Discoid LupusSummertime is not my favorite time of the year. This is always the worst time for me due to the sun becoming overwhelming on the body. The skin is the...Reactions0reactionsComments4 comments
My Experience Having Covid-19It was the day I knew would come eventually, and I dreaded it. My lateral flow test showed a very bright red positive line! I had COVID-19! I live in...Reactions0reactionsComments3 comments
The TransformationIt was historic...A huge freeze with snow in San Antonio! It didn't last a few hours, like other storms. It came and stayed for days. My friend hadn't seen or...Reactions0reactionsComments6 comments
My Experience With a Maternal Fetal Medicine DoctorIt was such an ordeal when I got my lupus diagnosis. There was so much trial and error on the meds that I was taking for the first few years...Reactions0reactionsComments2 comments
Give Yourself Permission for Self-CompassionOn my lupus journey, I feel like I am the hardest on myself. Do you ever feel like you have to be perfect in your lupus journey no matter what...Reactions0reactionsComments11 comments
6 Unexpected Experiences I Had With a Health CoachSince my health is compromised, I've resisted the idea of it being "coached." I have already sought help from several medical professionals and feel I'm doing my best within my...Reactions0reactionsComments4 comments
How Journaling Changed My Lupus OutlookI have been journaling since I could write. It has always been a part of my life to get things out of my head, especially in trying times in my...Reactions0reactionsComments2 comments
Expressing Gratitude with LupusHaving to deal with lupus can be challenging at the best of times. It's not always easy to feel gratitude for anything when you're struggling emotionally or in a bad...Reactions0reactionsComments4 comments
We Got Married!It gives me the creeps! No, I am not talking about blood being drawn from my elbow. Nor am I talking about a kidney biopsy. I am talking about the...Reactions0reactionsComments5 comments
