Life with Lupus 22 Years & CountingLiving with life after finding out I had lupus has changed my life for the worse. My family life is not what it used to be, and my husband acts...reactions10comments
Carpe Diem, Goals, and LupusI know that my days are numbered, and I have no idea how high that number goes. It’s not fun to think about, but it’s true. I only get so...reactions18comments
Lupus and Vitamin DI never realized just how important vitamin D is in our bodies until I experienced becoming extremely deficient. I had been feeling very unwell for a number of weeks but I...reactions7comments
5 Topics to Discuss With Your RheumatologistWant to get the most out of your appointments with your rheumatologist? Here are 5 key topics to discuss together. Prepare this information ahead of time to share with your...reactions2comments
Sitting Waiting: Lupus Lessons LearnedI sat silent as I sat at my infusion, waiting for the drips to be complete. All I heard were my thoughts and the ticking clock. My thoughts are screaming, "why...reactions8comments
Living With Lupus Being Pregnant With Baby No. 2Being pregnant with baby No. 2 has been overwhelming. I have a 2-year-old that I am continuously trying to potty train and still has the need to be attached to...reactions1comment
What Is The Connection Between Lupus and My Painful Periods?Getting that time of the month sucks for every girl. But dealing with a period can feel even harder when you have lupus. I always joke that it’s either a...reactions1comment
Guilt, Shame, and ApologiesHave you ever felt guilty for things you could not do because of lupus? How do you handle times that you look forward to but cannot attend because lupus rears...reactions11comments
How to Handle Insurance Denials and LimitsFinding out that your health insurance company has denied a claim can be frustrating and complicated. Your insurance company must provide you with the following pieces of information if it...reactions1comment
The Grief of Losing the Old YouOne of the most difficult symptoms of lupus isn't fatigue, joint pain, or sun sensitivity. It isn’t the rashes or hair loss. It’s the grief of losing the life we...reactions5comments
Discrimination Against AppearancesThe discrimination in the world is wild. You might have noticed through my articles that appearance has been an issue for me over the last few years. It has affected...reactions1comment
My Imperfect Patient ExperienceI've had so many negative experiences at medical appointments that I've stopped counting. I have gone through ridiculous wait times, difficult blood draws, doctors who blew me off, belittled me...reactions10comments
5 Things I Would Tell My Younger SelfIt has been a few years since I first started feeling sick and got my official diagnosis. Looking back at those memories it still feels surreal, and I can't believe...reactions4comments
Parenting With LupusParenting with lupus has been hard, especially when I was in nursing school. My daughter is 2 years old and is in the routine of getting sick and building her...reactions2comments
When Medication Side Effects Leave Lasting ScarsTreating lupus can require so many steps that sometimes I feel like my appointments and never-ending phone calls to medical offices should count toward my daily workout goal. It's that...reactions8comments
To Move or Not To Move?You would think a simple question had a simple answer. But, there are so many factors to think about, especially when you have been diagnosed with lupus. Living in NYC...reactionscomments
Recent Doctor's AppointmentMy recent doctor's appointment with my rheumatologist was remarkably interesting. She was my new doctor and the first time I contacted her was through video chat because she had covid...reactionscomments
9 Tips For Traveling Overseas With LupusTraveling overseas with lupus or any other chronic illness can be daunting. However, I believe we shouldn’t have to miss out on seeing our beautiful planet as long as we...reactions3comments
5 Practical Tips to Manage AnxietyAnxious much? Anxiety can be so overwhelming as you battle lupus. It’s something so many of us deal with. An emotion that can get the best of you at times...reactions12comments
What Happens When a Family Member Gets COVID?A few days after returning home from a family vacation, my dad started to feel ill. His throat was itchy, and he had a slight fever. I immediately grabbed a...reactions1comment