Fighting for AnswersIt's been 26 years since I was first told I might have lupus, and I still don't have a definite diagnosis. Because I have periods where I am fine, people... By AmberB.1 min readBookmark for laterReactions 0 reactions Comments7 comments
Lupus Advocacy: The Honest TruthAdvocacy for lupus can be overwhelming. Dealing with other people’s issues while battling your own can lead to advocacy burnout. Life as a lupus advocate is not easy. It is... By Racquel H. Dozier3 min readBookmark for laterReactions 0 reactions Comments2 comments
The Never-Ending StruggleI was diagnosed in 1998, but managed well and had few flares. As time has gone on, it has gotten worse. It took my nursing job, my mobility (in a... By lupuscrusader1 min readBookmark for laterReactions 0 reactions Comments1 comments
What I Learned From Lupus Advocates During Our Instagram Live EventI am continuously impressed by my fellow advocates here on Lupus.net. I enjoy reading their articles, and I'm encouraged when I learn about their life experiences with lupus. Recently, I... By Ava Meena4 min readBookmark for laterReactions 0 reactions Comments2 comments
Tired Nurse WarriorI was diagnosed in 1994, the same year I graduated from nursing school. I have been living with multi-system involvement- most recently the death of my right kidney and more... By NPrim1 min readBookmark for laterReactions 0 reactions Comments3 comments
Too Tired TodayI am a mom to 7 humans. Three that are under 13 years old. One has Down syndrome. He has the mind of a 3-year-old, is non-verbal, and is very... By TANISHA462 min readBookmark for laterReactions 0 reactions Comments2 comments
Confused and ExhaustedI was adopted at 3 days old. My adoptive mother never told me any information and was quite touchy about the subject. I'm now 54 with children and grandchildren and... By RonnieJ1 min readBookmark for laterReactions 0 reactions Comments3 comments
Lupus Is Killing MeI was officially diagnosed only about a year ago. My Mother-RIP-also suffered & lost her battle with this devastating disease. I believe I have been suffering for Lupus for many... By CommunityMember1722 min readBookmark for laterReactions 0 reactions Comments6 comments
By the NumbersI have developed a system to help my family understand how I am doing each day. I have the traditional 1-10 pain scale, but a physician's assistant I used to... By bethv1 min readBookmark for laterReactions 0 reactions Comments1 comments
Gotta Keep FightingI was diagnosed when I was 24, at the time my daughters were 3 and 5. I didn't know what was wrong. I went to doctor after doctor trying to... By Tabbi19831 min readBookmark for laterReactions 0 reactions Comments3 comments
Lupus Changed How I Saw MyselfI was diagnosed with Lupus when I was 21. I had a grand mal seizure and thought it was epilepsy. I didn't know entirely how the disease affected the body... By Deelausanboy21 min readBookmark for laterReactions 0 reactions Comments7 comments
Missed ChancesJust read about the Glandular fever virus connection, I had it at 14, that's 50 years ago. It's incredible isn't it, I directly asked my Rheumatologist (who also now claims... By Lupause1 min readBookmark for laterReactions 0 reactions Comments2 comments
What Lupus Has Taught MeLupus, what have you taught me? You've taught me compassion, not to judge anyone, that many suffer in silence - behind a smile while inside they are dying. That the... By LolaBeans134 min readBookmark for laterReactions 0 reactions Comments2 comments
Managing with LupusAfter living with Lupus symptoms for years and being diagnosed 2 years ago. I have learned to get at least 10 hours of sleep per night. I take my hydroxychloroquine... By Arlene1 min readBookmark for laterReactions 0 reactions Comments3 comments
My Diagnosis Was an Unexpected SurpriseLast year, I decided to make an appointment with the neurologist due to having more than usual nerve pain, especially in my feet and both hands and arms. But the... By Lil Mama 472 min readBookmark for laterReactions 0 reactions Comments1 comments
22 Years and Still Counting...22 years ago I finally got my diagnosis but for over 25 years I had experienced symptoms. I had been dismissed by so many doctors. I began to think it... By momof21 min readBookmark for laterReactions 0 reactions Comments3 comments
LupiesI was diagnosed with SLE about 6 years ago. I didn't think anything of it because I was never educated by my doctors about what was actually going on in... By msulli1 min readBookmark for laterReactions 0 reactions Comments1 comments
This Lupie LifeI was diagnosed with Lupus in 2014. To say it was a game-changer is putting it mildly. I'm glad I found out later in life, or I would really be... By Nutrishalife1 min readBookmark for laterReactions 0 reactions Comments3 comments
5 Things I Learned From My First Surgery as an Autoimmune PatientHave you had surgery before? Until a few weeks ago, my answer was simply that I had my wisdom teeth removed as a teenager. Sure, that was technically surgery, but... By Ava Meena4 min readBookmark for laterReactions 0 reactions Comments17 comments
Becoming a Lupus WarriorI was practicing some self-care last summer when I started sweating and felt out of breath and passed out in the spa chair of the nail shop. I woke up... By Scorpiowoman142 min readBookmark for laterReactions 0 reactions Comments0 comments