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Read conversations, start a discussion, and connect with others about Lupus.

New Brand of Hydroxychloroquine

New brand of hydroxychloroquine doesn't seem to be effective. I am experiencing pain in joints that I have not had with my...

Methylpredisone

Just energizes me unbelievable how it has me ups.But nighttime too until fatigue sets in.But we all will get there Then I...

Sun & Lupus

What's the best sunscreen ,I currently have Sun Bum and am going to the Dominican ....

Type 1 Diabetes & Lupus?

Do any of you also have Type 1 Diabetes? What Lupus treatments work for you that don’t mess with your blood sugars?...

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently...

What are some tips for managing a chronic wound?

I have had a chronic wound on my left calf for 110 days now. I’ve been seeing a wound care specialist the...

Is there a connection between narcolepsy and lupus?

I know that fatigue and lupus go hand in hand, but I was telling my primary physician that I am always so...

COVID19

Has anyone with lupus survived COVID-19?...

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I...

tremors

Has anyone ever gotten tremors? Twice now, I have gotten tremors that were like my whole body getting the shakes uncontrollably, and...

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