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sleep

how do you get a good nite sleep when the pain wakes you up? do not like sleep aids....

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as...

I have sle lupus and rheumatoid arthritis

I have sle lupus rheumatoid arthritis I am taking Saphnelo infusion hydroxychloroquine and Azathioprine I’m also going through perimenopause I heard about...

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

Cannabis

Has anyone tried using medical cannibis for Lupus? I hear many great things about it but I would like to talk to...

Recently diagnosed with Lupus

Hi - Recently diagnosed with Lupus that attached the sac of my heart so my main discomfort/pain is in the chest area...

Abdo symptoms

Does anyone suffer with abdominal symptoms with their lupus I have been exhausted for 4 weeks. Having a CT scan tomorrow and...

Hair loss

My daughter’s been diagnosed with stage 2 lupus and along with other issues she is suffering hair loss. I wondered if anyone...

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