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Read conversations, start a discussion, and connect with others about Lupus.

Asthma and Allergies

It's been about 2 years since my lupus symptoms started. During that time, I've had several severe allergic reactions (anaphylaxis, rashes) to drugs and my asthma goes off the rails...

Should I be worried about unexplained bruises on the wrist, knuckle and elbow of one arm?

Hi all 👋 really happy to have found this community, as I’m a bit stumped and could do with another pov (or two!). I’ve been diagnosed with hypermobility and inflammatory...

Anyone have lower back pain NOT lupus nephritis?

Hi. I am new here. I was diagnosed with UCTD fifteen years ago--after positive ANA (homogeneous and speckled patterns), positive anti-dsdna, and positive Lupus anticoagulant and Anticardiolipin. I did well...

Peripheral neuropathy

Has any dealt with peripheral neuropathy? It started with my feet and then my hands and now it seems it is attacking my skin all over my body. My skin...

Shortness of breath

Hi, I hope you are all surviving this winter. I just have a question and wanted to see if anyone else experienced shortness of breath during a flare? Seems it...

Hair loss

My daughter’s been diagnosed with stage 2 lupus and along with other issues she is suffering hair loss. I wondered if anyone else here suffers this and what was a...

Optical hypertension and fast growing cataracts

This last eye exam, the opthomologist said my cataracts had grown fast and I was suffering from optical hypertension. He said I needed my cataracts removed immediately. As I researched...

ANA test

Is it possible to get a negative ANA test because of not being in an active flare? I always have low grade symptoms like a fever and fatigue but I...

Test Results

I have a positive ANA Titer 1:640 Pattern Smooth Speckled and a positive Anti-double stranded DNA Antibody(SLE) 41. My doctor started me on hydroxychloroquine but is not ready to give...

How do you cope when you are flaring but you have obligations?

Lupus flares can pop up unexpectedly and don't take into consideration your upcoming plans, or obligations with work, family or friends. How do you cope when you are fighting a...

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