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Forums

Read conversations, start a discussion, and connect with others about Lupus.

Being better

What does “better” beyond lupus and everything else you have going on look like for you?...

Documentary

Hi, I just watched a documentary called Pain Warriors on Prime. I can totally relate! The medical profession has failed alot of us with chronic pain issues! I recommend watching!...

Plans for Thanksgiving

What are your plans to keep yourself stress free during thanksgiving?...

Afraid to ask for help?

Are you afraid to ask for help on your lupus journey? If so, why do you think you have that fear?...

I think I may have lupus, but the blood work my primary did came back normal.

I feel awful… my shoulders, legs, neck and head are so achey. Feel like the flu aches, but my primary care physician said my blood work is all normal.. do...

Has anyone tried medical marijuana

This is my first post, I have often wanted to join such a community but afraid to follow my desire. I was diagnosed many years ago with CFS, then some...

What gifts would you want to receive?

Learning of a new lupus diagnosis can feel overwhelming. Some friends and family may want to help show support, but not know how best to show up. What gifts would...

Do you experience brain fog? Please share your experience with us!

Let's have a frank conversation about brain fog. Brain fog is often described as relentless, frustrating, and a major source of fatigue for up to 60 percent of people living...

Naturopathic medicine

Hello Warriors. Does anyone on the forum use naturopathic treatments, like meditation, exercise and nutrition? I have an appointment in a few days with a neurologist am not sure of...

Has anyone done the Benlysta infusions?

I had my first infusion a couple of weeks ago and I feel extremely exhausted. Everything takes more energy/effort than usual. I haven’t had any other side effects besides fatigue...

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