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Read conversations, start a discussion, and connect with others about Lupus.

Shortness of breath

Hi, I hope you are all surviving this winter. I just have a question and wanted to see if anyone else experienced shortness of breath during a flare? Seems it...

Hair loss

My daughter’s been diagnosed with stage 2 lupus and along with other issues she is suffering hair loss. I wondered if anyone else here suffers this and what was a...

Optical hypertension and fast growing cataracts

This last eye exam, the opthomologist said my cataracts had grown fast and I was suffering from optical hypertension. He said I needed my cataracts removed immediately. As I researched...

ANA test

Is it possible to get a negative ANA test because of not being in an active flare? I always have low grade symptoms like a fever and fatigue but I...

Test Results

I have a positive ANA Titer 1:640 Pattern Smooth Speckled and a positive Anti-double stranded DNA Antibody(SLE) 41. My doctor started me on hydroxychloroquine but is not ready to give...

How do you cope when you are flaring but you have obligations?

Lupus flares can pop up unexpectedly and don't take into consideration your upcoming plans, or obligations with work, family or friends. How do you cope when you are fighting a...

Disability

If you are getting SSDI What was the hardest part for you in getting disability? Was it proving the disability, being okay with being labeled disabled or something else?...

No appetite

I feel like food has become a source of anxiety. I don’t know how it will make me feel. I have no desire to eat. I eat a little but...

Possible Lupus diagnosis

Hello Everyone! I joined this group as I am waiting to get into a Rheumatologist next month. I wanted to just kind of run my issues and symptoms by everyone...

Help for a diagnosis

I’ve been dealing with Lupus like symptoms for just over two years with my most recent flare kicking off in September. I’ve seen doctors and I still don’t have an...

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