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Read conversations, start a discussion, and connect with others about Lupus.

Scared to Start Benlysta

HI Everyone, Would like to hear others experience with Benlysta. I feel this is my only option left and I'm not sure what to do. Thanks!!!...

Coping with the first year after diagnosis and tips for keeping track of symptoms

I'd love to know how those who have been living with lupus for a while made it through the first year(or more). Between all of the appointments, trying to keep...

Anyone else get hard, painful lumps in their armpits?

These are a fairly recent thing. This is the second time I’ve had them. I’m just assuming that they’re one more of the many weird things that happen to my...

Lupus and ebv

I was diagnosed with lupus a few months ago. Starting having lots of dizziness, lightheaded, and blood pressure dropping. Went in for follow up and they did blood work to...

Making family believe you really are sick

Does anyone else have their own family believe that there is nothing wrong with them and it's all in your head. This has caused a huge lump on my shoulder...

Diet

I'm a full gastric bypass patient. Nobody can point me in the right direction for eating with lupus. It's a odd combination. I don't eat like normal people. I'm on...

Positive lupus anticoagulant

I just got a positive lupus anticoagulant test results. I see hematology next month. Does anyone else test positive for that?...

Lupus and infraread sauna?

Hi I am Colleen Torres I am new at this forum, I have been living with Lupus, Fibromyalgia, Hashimoto's & Osteoarthritis for a while now. The pain is getting intolerable...

Lupus and itching

I'm new to lupus and I'm waiting to see a rheumatologist but since I found out that I more than likely have lupus my skin condition has gotten way worse...

Sojourns syndrome

Burning tongue Pallet Lips Gums Does this sound familiar to anyone? Nicky...

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