Forums

Read conversations, start a discussion, and connect with others about Lupus.

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I...

Just diagnosed with Lupus- scared, so many questions.

I will try to keep this short but here’s the back story before I ask questions. I’m a 32 year old female...

Finding a good Rheumatologist

I want to find a good Rheumatologist that specializes and understands Lupus. I have not been officially diagnosed yet. I do not...

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Calcinosis cutis

I have had SLE for 36 years and have developed, amongst many other things, calcinosis in my finger joints and most severely...

Friends & Family

I was diagnosed with SLE when I was 25. My husband left me with 2 small kids and my family got sick...

Chest Tightness from Sun Exposure

Anyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors...

Lupus Plus: Do you have additional health issues?

What are other health issues you face besides your lupus diagnosis?...

How do you handle the heat when wearing so much clothes to protect your skin from the sun?

Can you share what tips work for you for the hotter months in terms of clothing choices, cooling devices or general tips...

Sjogrens

I have had lupus for 6 years which my rheumatologist assures me is sub cutaneous and is not systemic. In the last...

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