Self Care During a PandemicMy name is Julie. I have scleroderma, lupus. It was so hard trying to get a doctor visit, everyone wanted to do...reactions5comments
Newly DiagnosedI found out about 60 days ago that I have skin lupus. I was treated with hydroxychloroquine and had a reaction to...reactions1comment
Disaster Responder Living with LupusMy husband and I have been disaster responders for years. I've been deployed to fires, floods, hurricanes (most recently Hurricane Harvey) and...reactions5comments
Juggling Family Tragedy and LupusI am not sure I have had Lupus, diagnosed March 23 2021. I have had years of back and hip pain. Then...reactions4comments
Coping with SLE and MotherhoodI was diagnosed with SLE the summer of 1987. I had to have surgery in May of that year. After surgery, my...reactions1comment
Car WreckMy name is Julie 51 years old. 2004 I was in a severe car wreck. My best friend died on impact. I...reactions4comments
My MGUS and Lupus ConnectionI’ve had lupus and Sjogren’s since my late thirties, I’m now in my sixties. I would say that I’ve been on the...reactions8comments
You Have Lupus. Now What?I did feel strange the day I went for Jury Duty. In fact, after arriving at the courthouse, I was so tempted...reactions15comments
A Childhood StoryI've had Lupus since a child. I experience pain differently compared to many. I thought the pain was a normal way of...reactions5comments
My Ever-Changing NormalWhen you graduate high school there’s this feeling that the whole world is available to you and to all of your dreams...reactions2comments
Steroid Cream for Scalp?Hi Ava, You mentioned steroid cream for scalp. Can you tell me more about that? Thanks JoAnn...reactions2comments
Dry Scalp? What Do You Do for It?Hi. Does anyone else have dry scalp? And what do you do for it? I am getting growths of some kind on...reactions14comments
"Drumming To A Different Beat"My name is Dion Langley and I am a professional drummer. I began playing the drums at the age of 6 and...reactions2comments
My Lupus Plus JourneyI was diagnosed with SLE when I was 37 years of age and am now 53 years old. I had my first...reactions2comments
Welcome to Lupus.net StoriesAt Lupus.net, we believe that we are stronger together than we are alone. Living with lupus can be a challenge, but the...reactions7comments
Everything Makes Sense Now...I always felt like something was off. From always being more tired than others, or years of kidney problems that no one...reactions3comments
Tired and MisunderstoodI'm always in so much pain and I hate when my family asks "what hurts?" I don't even know where to start...reactions1comment
Let's Play a GameLet me start out by saying I was a late bloomer. I got my first period just one week before my 15th...reactions1comment
Me, Myself, and LupusIt began right after my son was born, with getting sick and knowing something wasn't right, yet no one would listen or...reactions1comment
Lupus for Life 💜Lupus has been a major part of my life for over 30 years. It’s not something that I’d wish on anyone. Dealing...reactions2comments
