I struggled for years thinking I was not good enough! I could not keep up with my family and friends' pace. I always had to back out of activities and events because it was too much and I was too tired to do anything. The doctors keep telling me it was in my head, and diet and exercise would fix it.
Emotions of depression and anger
I was depressed and angry all the time because I just couldn’t, I couldn’t do stuff with the kids, couldn’t make the party, couldn’t do the school thing... it took about 20 years from my first “something is not right" feeling to my diagnosis in late November of 2020.
Treatment and support
Medications are helping, getting to additional specialists is helping, family FINALLY realizing that I am not crazy is helping.
It is a constant struggle but giving myself some grace has made it a whole lot better.
Interested in sharing your own diagnosis story, treatment experience, or another aspect of living with lupus?
Have you been diagnosed with fibromyalgia?