Stories

I was diagnosed with Lupus in December 2019. I probably would have never known if I had not requested testing for it after the loss of my sister in August...

I was diagnosed with Lupus on October of 2018. Before Lupus, I was very active with lots of energy. Now, I can barely exercise, because of constant joint pain and...

I was diagnosed in Oct. 2020. My life has drastically changed. I have cried for my old self. I am learning to live a new life. I am adapting on...

I was diagnosed in 2015. It is a daily struggle everyday. I also have peripheral neuropathy in both hands and legs, so that is another issue that I deal with...

Lupus has been a major part of my life for over 30 years. It’s not something that I’d wish on anyone. Dealing with the pain became a part of my...

Last post, in December found 4cm mass turned out to be renal carcinoma. January 28th had it removed, started recovery, but I never do anything easy. Feeding tube stopped working...

I have finally purchased 2 long sleeved shirts so I can go outside when it's sunny. I always get sicker when I go in the sun and break out in...

The day was September 3, 2013 and I got a call from my PCP saying I needed to see an oncologist, only having hounded her about a lump in my...

I'm 45 years old. I was diagnosed with Lupus in 2018, and a year later had to stop working as a MA because my health got worse. A little after...

While I do not have Lupus I do suffer TERRIBLY (in a Covid shot induced severe flare right now) from BOTH Fibromyalgia and RSD and have for years. It is...

I was diagnosed with lupus at age 18. Coming from a small town in Kentucky, not many doctors even knew what lupus was, much less knew what to do. I...

I was officially diagnosed in 1994 with Lupus, Sjogrens, RA and Fibro...although we knew I'd had it all my life. Very sick child with doctors scratching their heads with no...

I struggled for years thinking I was not good enough! I could not keep up with my family and friends' pace. I always had to back out of activities and...

It began right after my son was born, with getting sick and knowing something wasn't right, yet no one would listen or believe me. When it began I was a...

After having a breast reduction I became sick. The symptoms were ones I had for years. We lived overseas at the time the doctors told me nothing was wrong with...

Hello, I have had Crohns Disease which was diagnosed when I was 18. I am now 48. Had resection in 2005. Was great for awhile, then blood disorders continue to...

I’ve learned to live with this motto: Life is 10% of what happens to you 90% how you react. I’ve learned to cut myself a break when I need one...

My diagnosis came in 2015; although, there were several signs for many years prior (quite common). The process of learning to focus on the positive each day was not effortless...

My name is Julie 51 year old. I have scleroderma lupus. What I have learned during this hard time is not to let the pandemic affect me. I constantly do...

I was diagnosed with lupus in March 2020, just as the pandemic was shutting my city down. I had gone in for a blue swollen joint, and after some testing...