Lupus Has Changed My LifeIt was 2006, my dermatologist promised me he would help me. Yes, he did, absolutely. I am American Indian. I had 1 little pimple on my face. My doctor cut...reactions1comment
Both a Blessing and a CurseI look back 11 years ago, when I was diagnosed with Mixed Connective Tissue Disease and I honestly am blessed it flared up when it did. I lost my 11-year-old...reactions1comment
Lupus and the Mystery DiagnosisI started showing signs about age 12 but the doctors always came up with crazy reasons I was feeling the way I was. I learned to deal with it and...reactions3comments
The Silent MonsterLupus has affected my life in so many ways. I was diagnosed at 15 (I’m now 22). The day of my first doctor appointment, I couldn’t even tie my own...reactions1comment
Lupus Tried But Did Not Succeed...I was in a horrible car wreck in 1991... it was shortly after that I was diagnosed... pretty sure that was the trigger. I was 19. I am now 50...reactions1comment
Years Without AnswersI HAVE HAD A LOT OF HEALTH ISSUES FOR YEARS, But my mom didn't get any answers for awhile (I was 7 at the time). At one of my doctor's...reactions1comment
How a Lupus Diagnosis Saved My LifeI had struggled with pain and multi-organ complications for most of my life. Doctor said it was stress or depression. I could have open a mental health clinic with all...reactions1comment
Lupus, No Way!When I was told I had Lupus by my rheumatologist, I said no way, not me! I have pain, but I'm fine. Reading about it as a few years went...reactions2comments
Motorcycle Mama Keeps FightingBeing diagnosed in 2010, a single mom and a very active woman, Lupus was not real. It was something that a doctor said was the reason for my poor health...reactions1comment
A Warrior's Road to AdvocacyLupus has totally changed my life. It took over 10 years to diagnosis and by then I was quite ill. I have severe photosensitivity and can’t be in the sun...reactions1comment
How It All StartedI was diagnosed with Lupus in December 2019. I probably would have never known if I had not requested testing for it after the loss of my sister in August...reactions1comment
Slowing Down with SLEI was diagnosed with Lupus on October of 2018. Before Lupus, I was very active with lots of energy. Now, I can barely exercise, because of constant joint pain and...reactions3comments
My New Life with LupusI was diagnosed in Oct. 2020. My life has drastically changed. I have cried for my old self. I am learning to live a new life. I am adapting on...reactions1comment
Support Keeps Me GoingI was diagnosed in 2015. It is a daily struggle everyday. I also have peripheral neuropathy in both hands and legs, so that is another issue that I deal with...reactions1comment
Lupus for Life 💜Lupus has been a major part of my life for over 30 years. It’s not something that I’d wish on anyone. Dealing with the pain became a part of my...reactions2comments
Moving Forward Through FaithLast post, in December found 4cm mass turned out to be renal carcinoma. January 28th had it removed, started recovery, but I never do anything easy. Feeding tube stopped working...reactions2comments
My Battle with the SunI have finally purchased 2 long sleeved shirts so I can go outside when it's sunny. I always get sicker when I go in the sun and break out in...reactions5comments
By the Way You Have Lupus...The day was September 3, 2013 and I got a call from my PCP saying I needed to see an oncologist, only having hounded her about a lump in my...reactions1comment
My 45 Year StruggleI'm 45 years old. I was diagnosed with Lupus in 2018, and a year later had to stop working as a MA because my health got worse. A little after...reactions1comment
My Never Ending BattleWhile I do not have Lupus I do suffer TERRIBLY (in a Covid shot induced severe flare right now) from BOTH Fibromyalgia and RSD and have for years. It is...reactions1comment
