FeaturedActive 5 days agoIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...reactions233repliesAwarenessCoping
FeaturedActive todayCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...reactions6repliesCaregiving
Active todayRelatable Pain ScaleA NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...reactions132repliesCopingJoint PainSymptoms
Active todayAnifolumab for SLEAnifrolumab I was diagnosed with lupus in 2023 but my first flare (which was ignored at the time) was in 2000. I recently found a new rheumatologist and almost didn’t...reactions2repliesTreatment
Active todayConstant fatigue Daily, I am extremely tired. Does anyone have tips to help?...reactions160repliesFatigue
Active todayIntroducing myselfHello, my name is Nicole. I was diagnosed with lupus about 31/2 years ago. I recently moved to Albuquerque New Mexico and I’m trying to find a new Rheumatologist. (Which...reactions2replies
Active todayRest is the only answer!When I get a flare, which are much worse in the summer months! The only thing that really helps is rest! Family really don’t understand and still expect you to...reactions1replyCaregivingCoping
Active todayProblem getting pain meds?How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...reactions242repliesTreatment
Active todayShame and GuiltDo you have shame or guilt when needing to rest?...reactions184repliesCoping
Active 4 days agoDietAnyone on a special diet to help with flareups?...reactions1replyAnemiaBrain FogCaregiving
Active 4 days agoPain Is A TenI have been dealing, again, with a flare for 2 weeks. Waiting on my Rheumatologist to call me back. My pain is 10 on most days. I know this because...reactions1replyJoint PainSymptoms