FeaturedActive todayIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments224 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active todayChest Tightness from Sun ExposureAnyone else experience chest pains and difficulty breathing when exposed to sunlight? Another thing I noticed is that even if I'm indoors, during the Sun's peak hours between 10 am...Reactions0reactionsComments29 repliesAnxietyFatigueSun Sensitivity
Active yesterdayTriggers for FlaresSometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...Reactions0reactionsComments105 repliesButterfly RashFatigueSun Sensitivity
Active 3 days agoHip PainDoes anyone have trouble with hips aching?...Reactions0reactionsComments54 repliesSymptoms
Active 3 days agoCan't get out of this flareDoes anyone else have any issues with getting out of a flare. I was diagnosed a yr ago with Lupus but have been in denial. I went to Fl to...Reactions0reactionsComments13 replies
Active 3 days agoDiagnosisI am newly diving in to the possible diagnosis of Lupus. I have MANY correlating and debilitating symptoms. My pcp has ordered lab work and it is pending. I have...Reactions0reactionsComments2 replies
Active 3 days agoNew member "Thank you" for having me 🤗Hello Members, I was diagnosed with SLE & SCLE in 2008 with also Secondary Sjogren's syndrome & Raynaud's phenomenon. Having a past health history of other health conditions & over...Reactions0reactionsComments0 replies
Active 4 days agoWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...Reactions0reactionsComments160 repliesAwareness
Active 5 days agoWhat do you do?Sometimes that nemesis insomnia can hit us, What do you do when you aren’t able to sleep?...Reactions0reactionsComments18 repliesCopingSleep
Active 7 days agoBrain fog and fatigueHi all. I was recently diagnosed with lupus (SLE) in July 2024. I've always had brain fog, even before a diagnosis, but it seems like it's gotten worse recently. I'm...Reactions0reactionsComments9 replies