FeaturedIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...reactions239repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...reactions6repliesCaregiving
Active todayAltered Senses From LupusHas anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...reactions64replies
Active todayUniversal StudiosI am about to go to Universal Studios with my family. I am so worried I will not be able to keep up or endure the heat and the walking...reactionsrepliesTravelFatigueTips & Advice
Active todayAm I the only one that feels guilty for not being able to work?Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I don't have friends or family nearby and people...reactions149repliesWork & Employment
Active todaySun & LupusWhat's the best sunscreen ,I currently have Sun Bum and am going to the Dominican ....reactions36repliesSun Sensitivity
Active todayFamily SupportHow do you handle lack of support from your spouse or significant other? how do you get them to believe your lupus is real and can affect you instantly without...reactions77repliesFriends & Family
Active yesterdayConstant fatigue Daily, I am extremely tired. Does anyone have tips to help?...reactions169repliesFatigue
Active yesterdayShame and GuiltDo you have shame or guilt when needing to rest?...reactions209repliesCoping
Active 3 days agoPerception ChangeHow has your perception of lupus changed over time?...reactionsrepliesAwarenessTips & Advice
Active 3 days agoStay positive and keep stress to a minimum I got Lupus at 68 now 3yrs. I was fortunate to have Drs who diagnose quickly. Im taking a infusion every 28 days Saphnelo. It works great but you still...reactions3replies
Active 3 days agoWhat have you learned?What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...reactions202repliesAwareness