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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active today

Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

Active today

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active today

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...

Active today

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...

Active today

Stay positive and keep stress to a minimum

I got Lupus at 68 now 3yrs. I was fortunate to have Drs who diagnose quickly. Im taking a infusion every 28 days Saphnelo. It works great but you still...

Active yesterday

State disability

How do you all feel about State disability? I’m trying for myself, but was turned down two times . I will be seeing a judge in June I also been...

Active 6 days ago

Lupus

I have been sick for over a year. Unexplained exhaustion, pain in shoulders, back and knees. It literally hurts to take a deep breath. Now I'm having issues with my...

Active 6 days ago

Am I the only one that feels guilty for not being able to work?

Hubby works 6 days a week, 10-14 hrs a day. I feel guilty about that, and I have become extremely lonely. I don't have friends or family nearby and people...

Active 6 days ago

Pregnancy and lupus nephritis

Hey everyone Just wondering if anyone has gone through pregnant while having lupus nephritis? And what was your journey like Thanks in advance. X...

Active 7 days ago

Sun & Lupus

What's the best sunscreen ,I currently have Sun Bum and am going to the Dominican ....

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