FeaturedActive yesterdayIntroduce yourself to the communitySometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...Reactions0reactionsComments195 repliesAwarenessCoping
FeaturedCaregiving 101: Respite, and SupportHave you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...Reactions0reactionsComments6 repliesCaregiving
Active todayProtecting Your PeaceThe holidays have rolled in and the stress level can be high. So you have any tips to protect your peace and not stress during the holiday season? One tip...Reactions0reactionsComments306 repliesCopingMental HealthTips & Advice
Active yesterdayToo long to tell..a very difficult diseaseThe madness of systemic lupus is incredibly complicated....Reactions0reactionsComments2 replies
Active yesterdayBrain fog and low energyHi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...Reactions0reactionsComments23 repliesFatigueJoint PainSymptoms
Active 2 days agoSwollen face and handsMy daughter has Lupus her face and hands or swollen she in pain all the time can you please help....Reactions0reactionsComments0 replies
Active 2 days agoNailed it 🥹How many of you have issues with your toenails or fingernails? Do your toenails fall off or do you have weak and fragile fingernails? How does your doctor handle this?...Reactions0reactionsComments8 repliesSymptoms
Active 3 days agoConstant fatigue Daily, I am extremely tired. Does anyone have tips to help?...Reactions0reactionsComments134 repliesFatigue
Active 3 days agoFeeling like my health care team doesn't care as much as they shouldDoes anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...Reactions0reactionsComments124 replies
Active 3 days agoInvisible Disability DiscriminationFor those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing you are disabled because when they see you...Reactions0reactionsComments70 replies
Active 5 days agoDry mouth with watering Has anyone found away to help with dry mouth it's driving me crazy I even got all my teeth removed because I thought that's what was causing it so if...Reactions0reactionsComments89 repliesSymptoms