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Read conversations, start a discussion, and connect with others about Lupus.

FeaturedActive yesterday

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

Active today

ITCHING

Does anyone have a problem with itching?? It's driving me crazy, mainly at night. Please suggest something that will work to make it stop or make it clam down...

Active yesterday

Nobody Gets It

Sometimes I feel like a little old lady or a broken record when I hear myself saying my head hurts, or my back hurts, or my elbow hurts, or whatever...

Active yesterday

Altered Senses From Lupus

Has anyone had their senses of sight, smell, touch, taste, and/or hearing impacted by lupus? What is that like? Does anyone here have creative solutions to cope with this?...

Active yesterday

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus in general?...

Active yesterday

Mouth sores/ulcers

One of my most common symptoms of lupus is the mouth sores/ulcers. They appear everywhere in my mouth and last up to two weeks. They are extremely painful and nothing...

Active 2 days ago

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...

Severe headaches for years

Has anyone found relief from the severe headaches besides steroids?...

Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist pain and a finger that is buckling that...

Constant fatigue

Daily, I am extremely tired. Does anyone have tips to help?...

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