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Read conversations, start a discussion, and connect with others about Lupus.

FeaturedActive 2 days ago

Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us...

Featured

Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a...

Active today

Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain...

Active today

Pain after rest

When I arise in the mornings, usually the only thing that hurts is my neck. If I lie down on the couch...

Active today

Hoarse voice

Hi, hope everyone is doing well. Just have a question. Dies anyone's voice start to get hoarse after talking for a while?...

Active today

Invisible Disability Discrimination

For those receiving SSDI benefits, what are your main symptoms and how severe are they? Have you dealt with others not believing...

Active yesterday

What have you learned?

What is something you have learned on your lupus journey? What have you learned about yourself, about the community, or about lupus...

Active yesterday

Shame and Guilt

Do you have shame or guilt when needing to rest?...

Active 2 days ago

Triggers for Flares

Sometimes what we eat and certain things we do can trigger a flare. Do you know what triggers flares in your body?...

Active 3 days ago

After Flare Self-Care

It's hard sometimes to bounce back after flaring for a period of time. What are some of your essential self-care needs after...

Active 3 days ago

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real...

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