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Read conversations, start a discussion, and connect with others about Lupus.

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Introduce yourself to the community

Sometimes the only people who understand are others who are living with lupus. Your story may really help someone else. Tell us about: 1 fact about your life with lupus...

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Caregiving 101: Respite, and Support

Have you ever found yourself slowly realizing that you are slowly doing more and more? It's a fact that life as a caregiver does not always happen quickly, and often...

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Brain fog and low energy

Hi, I am experiencing brain fog and extremely low energy levels. Yesterday I walked for 2 miles and I was exhausted. I pushed myself to exercise because my rheumatologist said...

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Diagnosed Today

Hello all..... My name is Michelle and today my doctor called with a diagnosis of Lupus. I'm in shock..... I have wrist pain and a finger that is buckling that...

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Relatable Pain Scale

A NP I was seeing gave me the following pain scale to make it easier for me to understand where my pain was, and to help my medical professionals understand...

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Lupus recurring after numerous years of remission

Good Afternoon, All. I'm hoping for some validation. In 1973 I was given Azo Gantrisin for a UTI. I quite quickly developed a butterfly rash, joint pain and extremely fatigued...

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Pregnancy and lupus nephritis

Hey everyone Just wondering if anyone has gone through pregnant while having lupus nephritis? And what was your journey like Thanks in advance. X...

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How are your Flares?

I recently had one of the worst flares I have ever had. However, I kept questioning if I just had a stomach bug or if it was a flare. As...

Active 2 days ago

Problem getting pain meds?

How many have had issues getting pain medications? Has it been a struggle to convince your doctor that your pain is real and has become unbearable?...

Active 2 days ago

Staying Uplifted

What do you all do to stay uplifted? How do you combat the depression that can come with dealing with lupus? ~Racquel~ lupus.net team member...

Feeling like my health care team doesn't care as much as they should

Does anyone ever get tired of feeling like your doctors aren't placing enough importance on your symptoms? I've been struggling with sinus tachycardia and hypertension. It feels like there is...

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