The Never-Ending StruggleI was diagnosed in 1998, but managed well and had few flares. As time has gone on, it has gotten worse. It...reactions1comment
Pregnancy and LupusI have reached 7 months in my pregnancy, and my flare is still consistent. I have taken a break from social media...reactions1comment
What Is Imposter Syndrome and How Can We Overcome It?Sometimes I feel like a fraud. Putting on these masks while battling lupus can be exhausting. In a world where you're expected...reactions4comments
Lust and Lupus: Is the Sex Really Worth It?I guess I am just lucky, but not "play the lotto" lucky. Let’s be real: I won the genetic jackpot with several...reactionscomments
The Long HaulI am now 68 years old and have suffered through Lupus for 20 years. Thankfully I was able to find a wonderful...reactions2comments
CPAP Therapy: An Unpleasant Solution for My Fatigue ProblemsSometimes, taking responsibility for your health kind of sucks. Have you been there – where you just want to do the right...reactions6comments
Dealing with Covid and LupusAfter almost 3 years, Covid finally got me. Unfortunately, my husband fell ill first. The day after Thanksgiving, I saw that he...reactions2comments
Not Enough Providers Know About Autoimmune ConditionsI have been in the medical field for over 15 years. I’ve seen it from the inside out. I have seen providers...reactions23comments
Winter Blues or Seasonal Affective DisorderOh, the weather outside is getting a bit frightful. Cold has moved in and with it less daylight for many. The winter...reactions2comments
Recent Flare and Emergency Room VisitHaving a recent flare has shown me how unethical the medical system really is. I just had a recent flare while pregnant...reactions2comments
Friends, Support, And Lupus AwarenessWhen I returned to school in the fall after my diagnosis, some of the teachers and students knew about my experience in...reactions2comments
Why I Am Grateful For My Sister and Her SupportDuring my most recent brush with death in 2018, my sister was right there by my side. In January 2018, I suffered...reactionscomments
Finding Purpose Living Through a Lupus DiagnosisI was diagnosed with lupus at the age of 16. School has always been a priority in my house. Two years before...reactions3comments
Stuck in Sinking Sand, Part 3...Another trap! I can't take it! How many times since you have opened your eyes have you felt stuck? Stuck in pain...reactionscomments
Coping With Frequent UTIs and LupusI started to research everything I could about UTIs as I realized that I needed to do something fast! I read about...reactionscomments
What Basics Are In My Hospital Bag?When you live with chronic illness or illnesses, a possible admission to the hospital is something we expect. Those who have spent...reactionscomments
4 Ways I Advocate For Myself At The ER or Urgent CareAs someone living with lupus, there are times you have an urgent matter that needs immediate attention. When your doctor is not...reactions2comments
Lupus and My Second COVID Vaccine DosePlease ask your medical professional if the Covid vaccine is suitable for you. The following is my experience under the care of...reactions1comment
What Does Life With Lupus Look Like In 5 Years?Looking at Facebook on my phone, I see a post that reads, “What would you do if you had a glimpse for...reactionscomments
Hidradenitis Suppurativa and LupusHave you ever heard of Hidradenitis suppurativa? It is a chronic skin disease that causes painful, boil-like lumps that form under the...reactionscomments
