5 Things to Pack in Your Hospital BagWhen we hear the term "hospital bag," we think of a sweet decorative bag full of onesies and maternity clothes. What if we thought about that term to describe those...Reactions0reactionsComments0 comments
Lupus Horror Stories: Wicked Dreams Foretelling FlaresIt was a cold dark night. I could hear the wolves howling at the moon. A cool breeze came through my window and I shuddered. As I closed the window...Reactions0reactionsComments6 comments
What is Medical PTSD?Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a soldier returning from war or a victim of...Reactions0reactionsComments3 comments
Becoming HypersensitiveIt suddenly dawned on me yesterday that I have spent half of my life being sick and it’s a pretty scary thought! I was diagnosed with lupus about 14 years...Reactions0reactionsComments0 comments
Soothing Self-Care Giveaway Terms and ConditionsOfficial Rules, Terms and Conditions for the Soothing Self-Care Basket Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED...Reactions0reactionsComments0 comments
Living with Chronic Dry EyeMy problems with chronic dry eye appeared suddenly a few months after I was diagnosed with lupus. While on a road trip with my husband, I suddenly couldn’t make out...Reactions0reactionsComments0 comments
Just For A Moment I’ll ReleaseIt’s been a long time that I have had to wear a mask. Not the mask because of the pandemic but, the mask of making myself look well when I...Reactions0reactionsComments0 comments
My Diagnosis Story, Part 2During my second semester of grad school, I continued to search for a diagnosis. I was growing sicker and sicker. The brain fog intensified and the fatigue became unbearable. I...Reactions0reactionsComments2 comments
Coping with Brain FogSince my lupus symptoms began, one of the main issues I have struggled with has been a near-constant foggy-headed feeling that seems to come and go with intensity. In the...Reactions0reactionsComments1 comments
My Experience with Prednisone and OsteoporosisJust recently I was in a car accident, my second car accident. This time my daughter and husband were in the car with me. This emotional experience impacted me deeply...Reactions0reactionsComments0 comments
Me, Lupus, and ScleritisThere is so much more to lupus than meets the eye. I mean literally, lupus can meet your eyes and have an effect on them. Not only can the medicines...Reactions0reactionsComments4 comments
The Stigma of Explaining Lupus to OthersThe stigma of explaining lupus to others can be overwhelming sometimes because they don’t know what you go through daily. I have some people that call me most of the...Reactions0reactionsComments0 comments
Practicing Wellness To Protect Your Lupus Life, Part 1Do you ever feel like you aren’t well as you battle lupus? Does it feel like everything is coming at you all at once and just wearing you down? At...Reactions0reactionsComments0 comments
Quality of LifeThe quality of life becomes precious to anyone from birth to old age, but when you have a condition that attacks your norm, everything becomes more serious. I find myself...Reactions0reactionsComments0 comments
It’s Important to Forgive YourselfHave you ever felt guilty for not being able to do something because of lupus? Has your guilt caused you some undue stress? How about just being hard on yourself...Reactions0reactionsComments0 comments
Why You Need a Lupus Role ModelWhen I first became sick with lupus, I was a twenty-year-old college student majoring in music performance. My life was filled with books and exams, orchestra rehearsals, and practicing the...Reactions0reactionsComments0 comments
Facing Ignorance While Living With LupusOwning a handicap sticker should not cause you to feel shame. Some disabilities are not visible, so sometimes others will think you don’t deserve that spot as much as they...Reactions0reactionsComments0 comments
Misdiagnosis and Other Conditions Alongside LupusAs the saying goes, lupus invites all its friends to the party – or in this case, the body. Our 2nd Lupus In America survey gave us a more detailed...Reactions0reactionsComments5 comments
Footwear and ClothingThere are different seasons for different clothing’s but especially for people living with lupus. I learned that a long time ago when I started to have discoid lupus. When I...Reactions0reactionsComments0 comments
Living Past Stigma In Your Lupus BattleOh, you have lupus? What is that, cancer? I knew someone that had that and she didn’t take all those medications you take. She just ate vegetables and was fine...Reactions0reactionsComments3 comments