Living

It can be frustrating to explain lupus over and over again to people who simply do not understand. This can lead to simplified answers to save time and energy. Our...

I must've lost count of the list of symptoms that lupus has given me. I often feel like some of them have a cycle. I can be experiencing pain in...

After the move to Atlanta, I finally met up with a primary doctor. I am completely in love with medical centers like Jencare. When I went there, they did a...

How many times have you lied about how you feel as you battle lupus? For me, I can't even count the number of times I've stretched the truth. I haven't...

Have you ever had that "whoa" moment when a doctor prescribes a medication? As in, "whoa, this medication has some scary warnings!" Sometimes I don't know what's scarier: waiting years...

"In sickness and in more sickness," my then-fiance and I joked in the months leading up to our wedding ceremony. We had dated 7 years before getting engaged. Three of...

Not me! I did not take it well when my extremely compassionate and thorough rheumatologist said: "Have you considered retiring?" My mind began to race… 'She can not be talking...

January 2022 marks the 5th anniversary of my lupus diagnosis. I've learned so many things over the past 5 years, and I've gone through a lot. Two pregnancies, 4 different...

The move to Atlanta was a big deal for me. I was without my medication for about 2 months which caused me to go to the ER and get a...

Beyond popular belief, 'NO' is a complete sentence. Sometimes as we battle lupus, we have a problem saying 'NO.' This can be because we feel bad for saying no or...

Living with lupus, I had to be very cautious when it came to my health, even before the pandemic hit. The common cold or the flu could affect my immune...

A lupus diagnosis can feel like being suddenly abandoned in a foreign land. You thought you understood how your body interacted with the world around you, only for all the...

It's been almost 4.5 years since I got my official diagnosis but, I still vividly remember that day. I was so anxious and scared going to that doctor's appointment. Tears...

When you tell people you have lupus, they always seem to know someone who also has it. They always say that they are doing okay. I always wonder how one...

There are many ways that lupus patients like myself may feel like the weakest link, especially during the wintertime because this is when sometimes our lupus flares up the most...

As a lupus patient, I don’t have as much time or energy as most people my age. Even after getting the over 10 hours of sleep a night that I...

In our last article, Making Sound Healthcare Choices and Decisions in your Lupus Battle, we talked about health care agent directives, medical directives and health insurance. We discussed how important...

I have never hesitated to share my lupus with anyone. I'm a very open person, and nothing was off-limits when it came to being an advocate. I'd talk and write...

In Part 1 of Yes, You Can Travel as a Dialysis Patient, I mentioned the first 3 tips to travel successfully as a dialysis patient. Here are the remaining tips...