Living

Getting a diagnosis of an autoimmune disease like thyroid eye disease (TED) can leave you with some unanswered questions. Your doctor will likely tell you that the disease does not...

Dealing with lupus or any chronic illness is difficult and can be even more difficult without the proper support team. There is not enough credit in the day to say...

On the outside, you look like you have everything together. You are back on your own feet for the first time in 5 years. You have a new apartment with new...

Many aspects of lupus are outside of your control. You might experience flare-ups when symptoms worsen and periods when lupus symptoms are mild. Your rheumatologist might ask that you keep...

According to Brene Brown (author, social scientist, and researcher), "Unused creativity is not benign. It metastasizes. It turns into grief, rage, judgment, sorrow, shame." I have found these words to...

At times it feels like I can't speak about anything but the pains of lupus. I get stuck in the pattern of focusing on the hurt lupus can bring. Oftentimes...

Working with a chronic condition is difficult. That is an understatement. For some people living with lupus, it is impossible. Our 2nd Lupus In America survey gave us a snapshot...

Antiphospholipid antibody syndrome can be a tricky condition when it comes to dealing with lupus. Why? It occurs when your immune system mistakenly creates antibodies that make your blood much...

Living with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course, managing treatment – all while taking care of...

And so it begins. I could feel She-wolf (aka lupus) creeping along the edges of my life, looking for her opportunity to pounce. I ignored her, and I had way...

One of the most painful parts of getting sick with lupus was having to let go of my goals and plans. I mourned the loss of the life I had...

"To be beautiful means to be yourself. You don't need to be accepted by others; you need to accept yourself." –Thich Nhat Hanh It can be hard to accept and...

Traveling can be really stressful. But, traveling during the pandemic with lupus or any other chronic illness just adds another layer of stress. Thankfully I love planning and swear I...

Lupus can really play tricks with our minds. It can have us thinking that we can't do anything in our lives. Sometimes it even hits us with anxiety and paranoia...

So, I went on a trip to the cabin for my mother’s birthday. I noticed many things that my mother and I have in common dealing with our lupus. I...

I got my 2 doses of the Pfizer vaccine in April 2021. When I became eligible for my booster shot it was during the time Omicron was all over the...

We all have those moments where we look back and wish we could change something from a particular moment in time. People living with lupus who took our 2nd Lupus...

The concept of FOMO (the fear of missing out) has been circulating for a while and has helped many people put a name on the anxiety they may feel about...