Taking Charge of My Tangled Web of SymptomsAfter having three babies in three years, I was exhausted. Physically, I’d been through a lot of changes, and emotionally, it was...reactions6comments
When Symptoms Progress to DamageApproximately 1 year ago, I had to pause the first immunosuppressant I’ve ever taken for lupus: azathioprine. After 3 years on that...reactions2comments
Creative Outlets for Lupus Patients, Part 2When you have lupus, it can sometimes feel like you are just surviving instead of living. Making time for creativity can help...reactions3comments
Managing Lupus With Symptom TrackingOne of the most difficult aspects of my journey with lupus is keeping track of my symptoms and communicating them to my...reactionscomments
Lupus and Thyroid Eye DiseaseGetting a diagnosis of an autoimmune disease like thyroid eye disease (TED) can leave you with some unanswered questions. Your doctor will...reactionscomments
DiagnosisI was diagnosed 28 years ago when I gave birth to my youngest child. After I had her I felt off. I...reactions3comments
Standing Ovation To Our Support TeamDealing with lupus or any chronic illness is difficult and can be even more difficult without the proper support team. There is...reactions1comment
Depression Should Not Be a Dirty WordOn the outside, you look like you have everything together. You are back on your own feet for the first time in 5...reactionscomments
Lupus Symptom TrackerMany aspects of lupus are outside of your control. You might experience flare-ups when symptoms worsen and periods when lupus symptoms are...reactions6comments
4 Creative Outlets for People Living With LupusAccording to Brene Brown (author, social scientist, and researcher), "Unused creativity is not benign. It metastasizes. It turns into grief, rage, judgment...reactions2comments
What Lupus Has Taught MeAt times it feels like I can't speak about anything but the pains of lupus. I get stuck in the pattern of...reactions15comments
Lupus In America Data Reveal Struggles with WorkWorking with a chronic condition is difficult. That is an understatement. For some people living with lupus, it is impossible. Our 2nd...reactions5comments
Antiphospholipid SyndromeAntiphospholipid antibody syndrome can be a tricky condition when it comes to dealing with lupus. Why? It occurs when your immune system...reactions5comments
6 Tips for Staying on Top of TreatmentLiving with a long-term health condition requires us to stay on top of everything: doctor’s appointments, new symptoms, insurance, and, of course...reactions2comments
Taming My She-wolf: Life with Lupus and the Holiday AftermathAnd so it begins. I could feel She-wolf (aka lupus) creeping along the edges of my life, looking for her opportunity to...reactions2comments
How To Accomplish Goals Despite LupusOne of the most painful parts of getting sick with lupus was having to let go of my goals and plans. I...reactions4comments
Loving Yourself Beyond Lupus"To be beautiful means to be yourself. You don't need to be accepted by others; you need to accept yourself." –Thich Nhat...reactions8comments
Travel Tips For Lupus PatientsTraveling can be really stressful. But, traveling during the pandemic with lupus or any other chronic illness just adds another layer of...reactionscomments
How Are You Feeding Your Mind As You Battle Lupus?Lupus can really play tricks with our minds. It can have us thinking that we can't do anything in our lives. Sometimes...reactions7comments
Lupus Nephritis: Now On DialysisI've had Lupus since 2005. It went into my kidneys and now I'm on dialysis. Soon I'll be looking for a Kidney...reactions5comments
