A woman with lupus floats on a first aid kit in the middle of a stormy ocean while looking through her looking glass.

4 Ways I Advocate For Myself At The ER or Urgent Care

As a lupus patient, there are times you have an urgent matter that needs immediate attention. When your doctor is not available to see you, the ER or urgent care tends to be your only choice. Being your own advocate for care becomes extremely important in these situations. Chronic diseases have special needs. Without advocating for yourself, these needs might not be met, or it can change the course of your treatment. These are the tricks I use when at the urgent care or ER.

1. List of all your medications

Most of us have an arsenal of medications. I have a hard time knowing all my medications and doses by heart. Instead of carrying all my medications with me. I have a word file that includes all my medications, medication doses, and supplements. I give a printout to the office when I first arrive. Due to the nature of the medical system, patients have limited time with nurses and doctors. This way I can talk to the nurse when I am in the room about what ails me, instead of spending my time on giving a medication list.

2. My doctor’s summary

Ask your doctor to write a short summary of your condition and regular pitfalls you have. Give a copy of this letter to the front desk, so the physicians can have the information when you first arrive. This is useful for further supporting any information you may give the physician you are seeing in the urgent care and ER. This also saves you time when speaking to the nurse or physician in the room. Save the valuable face-time for the important stuff.

3. Patient survey

When you first arrive into an urgent care or ER, you are generally handed a “why are you here form.” I find that if the first item you write is, I am a lupus patient that is immunosuppressed, with Raynaud’s, Sjogren’s, etc. (or what you use to describe your condition). This makes the doctor aware of your condition before they enter the room. This gives you a bit of an advantage, also saving the face on face time for the important stuff.

4. Speak up

When you are in the room don’t be shy to speak up. This is your time. You have already set up your visit with the above 3 items. Remember that the Urgent care or ER doctor does not know your full condition, talk to the doctor about what’s going on with you, and discuss what worked in the past. If it is something you have been afflicted with before it is ok to suggest what treatments have worked with you before.

I know it is difficult to talk to those in authority, but who know your condition best? You. If you are not confident about your condition, then educate yourself. This gives you the confidence to talk to the doctor about how to resolve your issue. I have several times requested several choices for treatment. Oftentimes one I have had before pops up when the doctor is making suggestions.

Hope these items can help you with advocating for your self at a new doctor’s office. You are your own best advocate. What has helped you in your urgent care and ER endeavors? Please comment to share your strategies for a successful visit.

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Lupus.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.