Tips For Hospital Stays Because of LupusUnfortunately, hospital stays can be a normal part of living with lupus. Random pains and issues have to be taken seriously and it could take a trip to the emergency... By Gabrielle Davis3 min readBookmark for laterReactions 0 reactions Comments4 comments
Lupus and DepressionEveryone knows the feeling of being sad, disappointed, or stressed. These feelings are normal, especially after a negative experience like a falling out with a family member or the loss... By Meghan Bea2 min readBookmark for laterReactions 0 reactions Comments0 comments
COVID VaccineI received the COVID vaccine, you guys. Let me tell you how! The first thing I did was make 3 different appointments because I have always been either late to... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments0 comments
I Know What You Are Going To Do This SummerBeach, mountains, Europe, the Caribbean, or grandma’s house. Each year, if we are fortunate, we are given the opportunity to vacation. There are so many in the lupus warriors who... By Christopher Reed4 min readBookmark for laterReactions 0 reactions Comments2 comments
Virtual VisitI really do not like virtual visits and I have plenty of reasons why. When a doctor is noticing and evaluating me, I feel like they should see me in... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments0 comments
My Journey To Filing for Disability, Part 2Filing for disability is a process that you truly can’t understand unless you've been there. It’s necessary, but it's a journey. When you are doing your research it doesn’t look... By Amber Blackburn, RN4 min readBookmark for laterReactions 0 reactions Comments0 comments
My COVID Vaccine Experience, Part 2As I maneuvered my car past the line of people trailing into the hospital, I felt a sense of deja vu. Same hospital. Same parking lot. Same signs directing patients... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments2 comments
Hoping for BetterI started to get signals that my body was having issues again. I should have listened but now my body is feeling it. What makes it extra hard is that... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments0 comments
How My Attitude Toward Medication Has ChangedIt’s been a little over 4 years since I was diagnosed with lupus and sent off to the pharmacy to pick up my first prescription. I spent a lot of... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments2 comments
Take the Person Before Patient SurveyThe Person Before Patient Survey is now closed. Thank you for your interest! What makes us the people we are? Living with a serious health condition like lupus can mean... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Stuck in Sinking Sand – How Do I Get Out? Part 1 of 3Stuck, splat, and stuck like that! Have you ever felt just stuck? Stuck in a conundrum of particles that keep you from just moving freely? Like you stepped into some... By Racquel H. Dozier2 min readBookmark for laterReactions 0 reactions Comments2 comments
Why Are People With Lupus So Tired?Nearly every person with lupus experiences fatigue at some point during the course of their disease. Fatigue can feel like crushing exhaustion, low-level tiredness, or even being too wiped out... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Daughter Ava Turned 1Ava has turned 1, and she has become more active than anything. She has shown me the better person that I could be. When I am sick with lupus, I... By Jokiva Bellard3 min readBookmark for laterReactions 0 reactions Comments2 comments
Tinnitus – My Constant CompanionLast year I had a terrible upper respiratory infection. A couple of days after the symptoms began I woke up with roaring tinnitus. The loud buzzing noise in my ears... By Ava Meena3 min readBookmark for laterReactions 0 reactions Comments8 comments
Lupus and My Second COVID Vaccine DosePlease ask your medical professional if the Covid vaccine is suitable for you. The following is my experience under the care of my physician. Just like my first vaccine, I... By Maggie LoBue3 min readBookmark for laterReactions 0 reactions Comments1 comments
How I Cope With FrustrationEver felt like you have had mood swings and do not know why? You would think that would only happen during our time of the month. When I spoke to... By Jokiva Bellard2 min readBookmark for laterReactions 0 reactions Comments1 comments
The Best Jobs for People Living With LupusFinding and holding down a job can be difficult when you’re living with a chronic illness like lupus. Even after the passage of the Americans with Disabilities Act, it isn’t... By Meghan Bea3 min readBookmark for laterReactions 0 reactions Comments10 comments
HOPE: Holding On Purposely Every DayHave you ever felt at odds with wanting to fight for your life and just giving up because of all the pain? I know I have and it is a... By Racquel H. Dozier2 min readBookmark for laterReactions 0 reactions Comments0 comments
Community Views: What Lupus Pain Feels LikeAs with any diagnosis, lupus affects people differently. However, most people with lupus experience pain at some point. It may include pain in specific joints for some people, while others... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments22 comments
Dear Lupus, I Declare VictoryDear Lupus, What is your problem? Sometimes, you try to make this life so difficult. You get on my last nerve and can bring on so much agony and pain... By Racquel H. Dozier2 min readBookmark for laterReactions 0 reactions Comments0 comments