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Read conversations, start a discussion, and connect with others about Lupus.

Lupus and bloodshot eyes

Hey everyone...I'm relatively new to this lupus thing. Has anyone experienced bloodshot eyes as part of their symptoms? My 16-year-old thought that...

Lupus Positive- crazy swelling symptoms

So in my last post I explained my situation. Please go to my profile to read. I have my first appointment with...

Lupus rash or Folliculitis

Hi there, I’m wondering if anyone here can help. I have been dealing with this for a while. I know I have...

Disability psychological exam

Has anyone ever has a psychological exam for disability? The questions they ask don't pertain to your illness! This process is annoying!...

Pain

Hi! I’ve been diagnosed with lupus since 2015. But I only flared up last year June. Since then, my pain never stopped...

Thanking Caregivers

If you could write a letter to your main caregiver, what would you say? I know sometimes I forget to thank my...

Insomnia with Saphnelo?

Do you experience insomnia with Saphnelo? I do and can be up for 24 hours after the infusion....

Dr won't look at me while he's talking

My Rheumatologist won't look at me when he's talking. Does that mean he doesn't care? I just think it's strange!...

Red Light Therapy

I was wondering if anyone on here has tried the Red Light Therapy. I have but then I also react to the...

New Normal

So is this my new normal? Some kind of pain everyday? Are there ever days when you are pain free and feel...

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