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Read conversations, start a discussion, and connect with others about Lupus.

Newly diagnosed with questions

Hello all, I was recently diagnosed with lupus by my rheumatologist after years of Dr's and pain and searching with no answers. After seeing her since January and having multiple...

Anyone have ideas for how to help flare ups?

I’m hanging on by my fingernails(so to speak). I am so sick of feeling sick. I shouldn’t complain cuz I know others struggle way worse. But can anyone tell me...

Pushing for diagnosis

Hi, My 13yo daughter has been in and out of the doctors for the last two years. She has this recurring rash (see photo) which begins as a red malar...

Managing Lupus when Treatment Isn't Simple

What are your experiences managing lupus when treatment advice isn't clear or you don't have the necessary resources? What helps you get through the day?...

Decrease in symptoms

I've noticed that when I have an infection, cold or virus my discord lupus blemishes decrease and so does the itchiness. Just wondered if when my immune system is attacking...

Breathing

Has anyone have trouble with breathing like the feeling of not getting enough air or going up level of stairs your out of breath? I get this sometimes like now...

Anyone else having balance issues or TIA's?

This question comes from the community member Mrschp: "Has anyone ended up with balance issues? Over the past two months, I have fallen four or five times. I can't remember...

benlysta

This may be an odd question..anyone experienced flares a few hours after benlysta iv infusion..i always get flare symptoms after my infusions...

where are old timers?

I had 12 doctors who took 18 years to diagnose correctly. At 68 no one knows why I am still alive. Lots and lots of permanent damage but no more...

New to this

Sorry to be nosey, but what is the thing that works best for this condition that you use, or do. Thanks I appreciate it....

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