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Read conversations, start a discussion, and connect with others about Lupus.

What tips do you have for managing medications?

Once I week I refill my pill boxes with my medications. It takes me about 20 minutes and I try to take time each week to check if I have...

Dolquine & Precautions

I was recently diagnosed with Lupus and Sjogren and was put on Dolquine. Was wondering if I need to pay extra attention moving forward to infections like wearing a mask...

Unwanted Lupus Warrior Promotion

Hmmm!! Who would ever thought that I would be living a life as a Lupus Warrior who has been diagnosed almost three years. This new position has not been easy...

heliocare

Have anyone tried the Heliocare for sun protection. I just heard about it a day ago. It can be purchased at local Walgreens....

Continuous Crying (Lupus or Dolquine??)

Ever since I was diagnosed with Lupus and put on Dolquine, I seem to be crying non stop, am easily overwhelmed and very very sad and anxious. Unsure if it's...

Heat and flares

For those in the high heat areas how does the heat affect you? Many think heat is better but for me it agitates my body and brings on flares....

Newly diagnosed with questions

Hello all, I was recently diagnosed with lupus by my rheumatologist after years of Dr's and pain and searching with no answers. After seeing her since January and having multiple...

Anyone have ideas for how to help flare ups?

I’m hanging on by my fingernails(so to speak). I am so sick of feeling sick. I shouldn’t complain cuz I know others struggle way worse. But can anyone tell me...

Pushing for diagnosis

Hi, My 13yo daughter has been in and out of the doctors for the last two years. She has this recurring rash (see photo) which begins as a red malar...

Managing Lupus when Treatment Isn't Simple

What are your experiences managing lupus when treatment advice isn't clear or you don't have the necessary resources? What helps you get through the day?...

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