Anyone have ideas for how to help flare ups?
I’m hanging on by my fingernails(so to speak). I am so sick of feeling sick. I shouldn’t complain cuz I know others struggle way worse. But can anyone tell me what’s normal for the length of flare up? My doc never is much time and I’ve been diagnosed with lupus and Sjögren’s syndrome for several years and I still can’t understand it. Someone help!
Hi,
. First, I am so sorry you are dealing with a flare right now. They can be exhausting and frustrating, I know.
Second, don't think you ever need to minimize or explain your pain here. A flare is a flare and your experience is no less valid than someone else's. And go ahead an complain away! I mean, if you can't complain on a Lupus site, where *can* you complain? We all need a place to vent once in awhile.
All that said, the length and severity of flares can vary widely. Some flares can last a few days, while others can last months. It's really hard to put a timeframe on how long they will last.
So, I'm going to provide some information about flares that hopefully, you find helpful -- https://lupus.net/triggers-flares. It's pretty basic information, but when it comes to flares, the best you can do is try to minimize flare triggers and practice good self care. I know that's kind of an annoying non-answer, but, at this time, it's the best advice the medical community has for people living with Lupus. I wanted to share one more link to an article where our contributors share how they manage their Lupus flares. Maybe some of their suggestions will be useful for you. https://lupus.net/living/flares-coping.
Please know you are not alone in this and I do hope you get some relief very soon!
Best, Erin, Lupus.net Team Member.Reading this really helps cuz it's kinda what I've been doing and you got to fit your Lupus body to you if that makes sense. What works for me my not work for the next person.
, you're right -- what works for one person may not work for another! So, it can definitely be some trial and error to find what works best for you. And comparing your Lupus to another person's can be tricky as well, as Lupus seems to impact each person uniquely.
Thanks for joining the conversation!
Best, Erin, Team Member.
And dont ever say someones is way worse, think of yourself and breathe. xo
, good advice! Thank you for joining the conversation here!
Best, Erin, Team Member.
The severity and time will vary with flares. I think one thing that helps me immensely is rest. Resting without guilt and desire to do more.
Know your pain is valid and sometimes you’ll be able to push past and other days you may not and will need to rest.
I always talk to my doctor when I feel that he isn’t listening. I let him know and ask how we can sit and have a discussion about my case. I always bring my most pressing questions written down to make sure I don’t forget. I hope that helps some . ~Racquel~ Team Member
