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Read conversations, start a discussion, and connect with others about Lupus.

Doctor Care

My rheumatologist will only help with prescribing Mycophenolate and taking blood & urine every 6 months. I'm deathly allergic to Plaquenil or Hydroxycloroquine so all I have is the Cell-Cept...

Could this be a malar rash?

I've had a rash on my face that comes and goes for a few years now. I also have a lot of joint pain and swelling in my wrist and...

What phrases are you tired of hearing?

When you tell people you have a chronic condition, like lupus, people have a tendency to speak without thinking... Phrases such as "But you don't look sick," is often stated...

My body is swollen all the time.

I was diagnosed with lupus December 7th 2022 after I had a heart attack in October. I have been taking hydroxychloroquine since December 2022. My body is always swollen and...

Hair thinning

Has anyone experienced thinning hair on one side? I know hair thinning is typical for older women but this started when I started having lupus symptoms about 10 yrs ago...

Swelling in my feet and legs

Does anyone have trouble with swelling in your feet and legs if so what do the Dr's do for you is this a flare up...

Rash

First Lupus rash and I've had lupus for years any tips...

Brain fog

What is brain fog...

Does anyone have problems with “acne” on face, arms or legs?

I am 41 and have had breakouts my entire life but seems to be worse lately especially on my upper arms. Some of my medications seem to worsen it....

Cart T-Cell Therapy for Lupus/Autoimmune

After taking over a decade to diagnose, and now having lived with Lupus for a number of years, which in my case caused Interstitial Lung Disease, Lupus Nephritis, Fibro, and...

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