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Read conversations, start a discussion, and connect with others about Lupus.

Pain

Hi! I’ve been diagnosed with lupus since 2015. But I only flared up last year June. Since then, my pain never stopped. I am currently on Plaquenil but it is...

Thanking Caregivers

If you could write a letter to your main caregiver, what would you say? I know sometimes I forget to thank my husband for all he does for me. I...

Insomnia with Saphnelo?

Do you experience insomnia with Saphnelo? I do and can be up for 24 hours after the infusion....

Dr won't look at me while he's talking

My Rheumatologist won't look at me when he's talking. Does that mean he doesn't care? I just think it's strange!...

Red Light Therapy

I was wondering if anyone on here has tried the Red Light Therapy. I have but then I also react to the sun so I didn't know if the Red...

Perception Change

How has your perception of lupus changed over time?...

New Normal

So is this my new normal? Some kind of pain everyday? Are there ever days when you are pain free and feel like you did before being diagnosed? It's very...

Help me, Lupus patient with questions

Hey. I’m new here so I don’t know how this really works, so bare with me. I was diagnosed with Lupus and Sjogren’s syndrome. After years of going through absolute...

Test Results

I have recently been experiencing arthritis and weakness in my hand. So I went to the doctor and she ordered labs to see if it was RA. The results came...

Men with lupus

I just want to know how many men have lupus or am I alone here? ...

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