Support What support groups or resources have you found most helpful on your lupus journeys?...Reactions 0 reactions Comments0 repliesCoping
How do I explain this to my family?My health has been on a downhill slide for about three years. I need to enlist more help from my adult children with household and outdoor work. I was very...Reactions 0 reactions Comments5 repliesCaregivingFriends & Family
Covid VaccinesAre any of you on Hydroxychloroquine and are not getting the Covid vaccine? I had Covid (w/double pneumonia, etc), a year ago, and now am suffering w/Post Covid Syndrome, and...Reactions 0 reactions Comments11 repliesCoping
Curious…Food changes?Hi, I have been reading a lot of the comments about all you amazing people! I just want each and Everyone to know, Each of You are seen, I See...Reactions 0 reactions Comments2 repliesDiet & NutritionSymptomsAwareness
What helps you cope?Lupus can be physically and emotionally draining. What are some things that help you cope on tough days?...Reactions 0 reactions Comments40 repliesAwarenessCoping
ANA 1:160 possible diagnosis Still not completely diagnosed with lupus but doctor started me on hydroxyxhloroquine. I’ve had positive ana for about 5 years and hip pain that long as well. Hips hurt worse...Reactions 0 reactions Comments1 replies
I Feel Like I Have Lupus but Bloodwork is "Normal"Hey everyone, I feel so lost at the moment and feel so frustrated, overwhelmed and down. Since October my hands and wrists have been hurting so much and randomly go...Reactions 0 reactions Comments6 repliesButterfly RashDiagnosis
Dermatitis Hi everyone, I have some symptoms resembling Lupus and a positive ANA blood test and inflammation- but haven't officially been diagnosed with anything. I'm wondering if dermatitis on the fingertips...Reactions 0 reactions Comments4 repliesButterfly Rash
DietI have Lupus/Fibromyalgia.i know I should eat a well-balanced diet, but I have no appetite, and most days I'm too exhausted or in too much pain to think about food...Reactions 0 reactions Comments1 repliesDiet & Nutrition
Malar Rash?This is my first time here. I’ve been struggling to find reasons for the way I have felt for a long time. I have family history of RA and have...Reactions 0 reactions Comments5 repliesButterfly Rash