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What tips do you have for managing medications?

Once I week I refill my pill boxes with my medications. It takes me about 20 minutes and I try to take time each week to check if I have enough of my meds and request more from the pharmacy if needed. It's not a simple process though, and requires a lot of attention to detail - and counting! Then, every morning, I transfer my daily meds into a pill container from the pharmacy (to help keep them safe from my two year old) and carry them with me all day in order to make sure I have them nearby so I can take them on time. I usually take them with meals, which helps me remember and not miss doses. It's a simple routine but it still took me a long time to start sticking to it. How do you manage your medications? Do you have any tips?

  1. I also put my pills in a pill case each week to remember. One of my symptoms is not being able to remember as well as I once did. My children help me but I don’t want them to have to be my caregiver being they are 19, 20, & 22. My husband passed away 7 years ago from ALS (Lou Gehrig’s Disease) so I know all to well how hard it is to be a caregiver. I don’t regret doing it for my husband and I also fell right into being my mother’s caregiver during the same time and continued two more years till she passed from dementia. But my children know when I have a flare up and they will call to make sure I’ve taken my medicine on time.

    1. thank you!💖

    2. It sounds like you have some incredibly kind and compassionate daughters. I'm so grateful that they chose to take care of you and want to make sue you get the best care. I think I would feel the same way if I had a good relationship with my mom. My boys are very young, and I also hope they don't have to take care of me too much, but you have given your daughters the freedom to stop and that shows strength. Some kids are forced into the situation, but you sound like you are not that type of person and you care about your daughters very much. Thank you for sharing some of your story with us. -Ava, team

  2. , a case is a good idea, thank you for sharing it. It sounds like you have done a lot of caregiving in your life. I am hoping for some pain free days ahead for you. Thanks for being part of the community. - Liz (

    1. For more information on medication management, check out this article on coping with everyday challenges of living with lupus:

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      1. I usually keep all of my pills in one place and set reminders on my phone to take them. With lupus fog it can be difficult to remember it all. ~Racquel~ team

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