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Read conversations, start a discussion, and connect with others about Lupus.

Two of our mothers pass away with Lupus!

More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...

State disability

How do you all feel about State disability? I’m trying for myself, but was turned down two times . I will be seeing a judge in June I also been...

Digestive issues

Does anybody fight getting nausea diarrhea, for no reason. Food is offensive to the smell?...

How can lupus impact complete blood counts? Just going for initial tests

Hi, I visited my doctor today as I have low neutrophils and low white blood count and this has been going on for long enough that it's 'chronic.' (Neutrophils: 1.21...

I have chronic diarrhea anyone else?

This is weird talking about! I can't go anywhere without having to go so I stay home lately I can not even walk my dog depressing drs are doing all...

Plaquenil- steroids- Lupus

I have had lupus for 8 years diagnosed have been allergic to everything I have been given. so tired of having joint pain and no DR will give me Tramadol...

Taking notes to the doctor.

I always have notes for my doctors about my health status and requests I have. Usually way too many! And I've always felt that I should write them on paper...

Lupus Awareness Month

If you could craft the most helpful lupus awareness month, what type of activities would you include?...

Chronic UTI’s & lupus nephritis

I was diagnosed with SLE over 25 years ago. Over the past year and a half I’ve had countless UTI’s. I recently was referred to a urologist who ordered a...

Diagnosed with Tumid lupus erythematosus (TLE)? Share your experience with us.

If you've been diagnosed with TLE, we want to hear from you! People in the past have told us that their TLE was rarely spoken about, and that finding support...

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