Discontinue meds

I am sorry, . That's a lot to deal with. And, I wish I could give you answers as to what is going on within your body, but I can't. I think it's very wise that you are being so proactive and seeing multiple doctors to address your health issues. I know it's probably frustrating and tiring, but it's important. I hope all the 'monitoring' starts revealing answers and possible solutions for you. Has the hematologist recommended anything to address your low platlet count?

Please know you are not alone in this. And please don't quit fighting for answers.

Best, Erin, Lupus.net Team Member.

,
It sounds like you are dealing with quite a bit.
As Erin mentioned, unfortunately, we can't offer medical advice. However, we do hope others in this community will chime in to share their personal experiences.
In addition, I thought I'd share a few articles that may provide some helpful information: https://lupus.net/living/pulmonologist and https://lupus.net/hematologic-treatment
Sending you all my best as you continue to search for answers and relief.
~Doreen (Team Member)

whew so much to deal with. I know it’s pretty scary having all of that come down on you so I’m sending gentle hugs and some healing energies. Talking it all through with your doctors and getting them to communicate with each other can definitely help to see and plan a course of action that can help quell it all down. It’s so hard to pinpoint it all alone and try to figure it out by yourself. The answers may take some time but will reveal themselves with good communication and by you journaling your symptoms to share with the doctors. I’m holding space for you to get some relief, ~Racquel~ lupus.net team member