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Read conversations, start a discussion, and connect with others about Lupus.

Rarely seem totally well

I have lupus (SLE) and I am on Rinvoq (immunosuppressant) and Hydroxycholorquine for over a year now. I tried Methotrexate (4 days a week in bed) and Imuran (fatigue, mouth...

Medication

Has anyone had their medication not work? Taking Hydroxychloriquin and Methotrexate and still in pain. Very frustrating!...

Self Care and Lupus

Educate yourself on every aspect of being diagnosed with Lupus ~ Body, Mind and Spirit. Become your own trusted advocate. 🌻...

Rheumatoid arthritis and Lupus

Hey! I've been diagnosed with Rheumatoid arthritis and Sjogrens for 15 years. I'm in a pretty bad flare right now. My pain has always beem tendon pain. Achilles tendonitis, carpal...

Feeling worthless

How does everyone deal with feeling like a worthless inconvenience when in a flare up and just burnt out to the core? I feel completely alone with no support or...

Neurologist

Hi everyone, I'm curious if a neurologist can refer an ANA blood test to test for lupus? Or can only a rheumatologist? Thanks...

APS Pregnancy Lupus

Recently been diagnosed with lupus after having complications leading to a baby loss at 23 weeks. Wondering how people went about getting diagnosed and if medications something that help build...

Keep my spoons

I got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...

Results for possible lupus

ANA 1.80 speckled pattern CCP 25 TO 30 Positive Joint muscle pain extreme fatigue, brain fog But had no butterfly rash . 5 years later have a butterfly blushing hair...

Disbelief

It's hard to have lupus and not look "sick". I never got the face rash and for a long time I had a difficulty with getting others, physicians included, to...

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