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Read conversations, start a discussion, and connect with others about Lupus.

Just diagnosed with Lupus- scared, so many questions.

I will try to keep this short but here’s the back story before I ask questions. I’m a 32 year old female. May of last year- I started having symptoms...

Skin Conditions

My dermatologist suggested I have petechaie on my legs. This started about 15 years ago when I was in a theme park in the heat with socks and tennis shoes...

Lupus and bloodshot eyes

Hey everyone...I'm relatively new to this lupus thing. Has anyone experienced bloodshot eyes as part of their symptoms? My 16-year-old thought that I was high the other day because they...

Lupus Positive- crazy swelling symptoms

So in my last post I explained my situation. Please go to my profile to read. I have my first appointment with a rheumatologist at the end of this month...

Lupus rash or Folliculitis

Hi there, I’m wondering if anyone here can help. I have been dealing with this for a while. I know I have autoimmune issues. When I showed my new GP...

Disability psychological exam

Has anyone ever has a psychological exam for disability? The questions they ask don't pertain to your illness! This process is annoying! I can't believe that people with actual physical...

Pain

Hi! I’ve been diagnosed with lupus since 2015. But I only flared up last year June. Since then, my pain never stopped. I am currently on Plaquenil but it is...

Thanking Caregivers

If you could write a letter to your main caregiver, what would you say? I know sometimes I forget to thank my husband for all he does for me. I...

Insomnia with Saphnelo?

Do you experience insomnia with Saphnelo? I do and can be up for 24 hours after the infusion....

Dr won't look at me while he's talking

My Rheumatologist won't look at me when he's talking. Does that mean he doesn't care? I just think it's strange!...

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