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Read conversations, start a discussion, and connect with others about Lupus.

Keeping personal journal to learn about flares

I was diagnosed with SLE in June 2024 and have been taking hydroxychloroquine since then. It seems to be working. However I am having a flare now and don't know...

Coping

What’s the most helpful piece of advice you’ve received about managing lupus symptoms, and how has it impacted your daily life?...

Things I found that help

Since I suffer with both Lupus & Sjogrens, I found that taking the supplement glutathione and Lactoferrin help. In addition, an infrared sauna....

Connection Between Lupus and Low Sex Drive?

At age 49, I started feeling really bad. I gained over 30 pounds in 3 months with no changes in my eating habits. I usually only eat a small breakfast...

Mystery lumps on forehead

Diagnosed with lupus in June but awaiting results from a full panel lab test to give my Dr some more info. Anyone get random knots/ swelling on forehead and upper...

Lupus Life Hacks

Are there any lupus life hacks that you think every lupus warrior should know? One of my most important lupus life hacks is keeping a food, mood, and symptom journal...

Lupus and lower leg swelling

Hi, my name is John and I was diagnosed with Lupus 1 month before my 50th birthday (October 2018). I've had just about every symptom that I've read about on...

Swollen hand and foot

In 2016 my left hand swelled up in ED white count high they did surgery on wrist no infection present. Recent see swelling of right hand and left foot in...

Work Injury: and I am stressing

Gm i am a lupus warrior was diagnosed in 2019 just to give you a little history of myself 💜🤓 this is a very serious question that has been heavy...

Torn about working and disability

Hello all, My name is Christine. I'm 54 and a grandma of 2, a mother of 3. I have lupus sle, ILD (lung disease), connective tissue disease, sjourns, raynauds, dermamytosis...

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