Tell us about your symptom and treatment experience. Take our survey here.

caret icon Back to all discussions

Symptoms

Hello! I’m really struggling with symptoms and no diagnosis. Just wondering if anyone has experienced any of these issues -
1. Costochondritis- dx in May 2020. I have recurring flare ups.
2. Positive ANA of 1:80 speckled pattern (positive but weaker side).
3. Slightly elevated protein in urine (usually the result for every urine test. Saw a kidney specialist who wasn’t concerned).
4. Red face, mainly cheeks and nose. I don’t think it looks like some of the butterfly rash pics I’ve seen, but definite facial flushing.
5. Salivary gland swelling and small cyst. Head and Neck Specialist asked if I had Sjorens Syndrome. Have eye appointment next week.
6. Bloodshot, dry itchy eyes (not constant).
7. Fatigue
8. Random joint and muscle pain.
9. Body wide tingling that sometimes feels like a prick on the skin, sometimes a burning sensation and other times an itch.

I did visit a Rheumatologist. I was asked a series of questions and told it was most likely the COVID vaccine that caused my positive ANA. They ran no blood tests and basically blew me off.

Do my symptoms sound like an autoimmune condition like lupus or sjorens? I am going to ask my primary for another referral to a different Rheumatologist and request blood work.

  1. ,
    I'm sorry to hear all that you are going through. It is super frustrating that you are not getting the care (and answers) you so deserve. Unfortunately, Lupus can be quite difficult to diagnose. The common symptoms of lupus can be quite different from person to person, and many symptoms can mimic other conditions. In addition, there is no one lab test that can be used to definitely diagnose lupus.
    I thought I'd share a few articles that may provide some helpful information: https://lupus.net/symptoms, https://lupus.net/tests and https://lupus.net/blood-tests.
    Hopefully others will chime in with their personal experiences.
    In the meantime, I wish you all the best as you search for answers.
    ~Doreen (Team Member)

    Please read our rules before posting.