Cannabis
Has anyone tried using medical cannibis for Lupus? I hear many great things about it but I would like to talk to someone that has experience. I was diagnosed 5 years ago and I immediately took the holistic route. The many side effects of the drugs that the doctors want to push out are horrible. I feel like I have tried everything with holistic but nothing seems to be getting it. Throughout the years when I would have a bad flare up I would use the prednisone to calm it down or even stop it. I would not like to rely on traditional medicine.
I have tried oils and although they worked at times it wasn't enough to keep me stable. It would take the edge off but wouldn't create a wellness feeling for me. I understand the concern about traditional medicine. You have to do what's right for you. What works for me may not work for you so you have to find the right treatment that works to keep you well and in the least pain. What else have you tried holistically? ~Racquel~ lupus.net team member ok wow it definitely takes some time to get a good and helpful treatment plan in place. ~Racquel~ lupus.net team member I have been using weed gummies and Kratom for over 6 years now I had to go on disability because I can no longer work so I took myself of all pain meds and went the natural way the gummies do not take the pain away completely but it takes the edge off enough that I can function and the same with Kratom which I’ve been drinking for over 10 years and it’s the same it takes the edge off enough to function I suggest doing your research and try different things and you’ll find what works for you because Lupus is different in everyone of us so our treatments will be different good luck on your journey I’ve had Lupus since the late 90’s and I’m still learning new things God Bless
I tried it during a flare both the CBT oil for the inflammation in my hands and a gummy during a flare. I did not notice an appreciable difference personally. Maybe a slight relaxing but not much else. I usually need pain management to be able to do my work. As a dance teacher and children’s librarian, I feel the amount I would have to take to be able to deal with the pain would leave me incapacitated.
My journey with Lupus has given me Interstitial Lung Disease, Lupus Nephritis (stage 5 right now), MGUS, and Fibro. I'm fortunate to have the Team of Doctors that I do. A brilliant Rheumatologist locally, a Pain Mgt Doctor (that has me on Norco 10-325), as well as Doctors I visit at the University of Washington/Seattle quarterly. After the local Rheumatologist said that trying CBD and/or weed gummies might help.... I did. For me the relief of 18mg THC gummies was well beyond my expectations, and I thought I'd found my "golden ticket".
The issue arose when I mentioned to my Pain Mgt Doctor that I had tried weed gummies, and how much they had helped my pain. He immediately said "don't say another word!" And then explained that IF he were to give me a blood test, and it revealed any level of THC, then my federal law he would be required to IMMEDIATELY cease my pain med script, and I would be required to turn over any pain/narcotic medication I might have. He also told me that "random" testing is required annually for anyone on narcotics. WHOA! A perfect example of the clash we face between traditional and progressive medicine. In my state recreational weed is legal, and I could also get my medical weed card.... however, either of those come with restrictions that affect other parts of my life, which I am not prepared to endure.
, Wow that is interesting. I'm surprised your doctor reacted so strongly when THC is legal in your state! I had no idea they did random testing. I'm glad your doctor gave you that information without using it against you and that you have found something that works for you!
Gabby (team member)Sheesh 🙄 that is the first I’ve heard of issues like that. Random testing and all I never knew that could happen. I can definitely understand how it’s not worth the issues that can come with it all. Thanks for sharing that information ~Racquel~ lupus.net team member
I took the route of stem cell patch therapy which has worked wonders for me. The only medicine I only take now is ibuproffen to ease the little bit of inflamation that I get. Other than that I feel like a whole new person.
, Thats amazing! I'm so glad you found something that is working for you!
Gabby (team member)that pretty awesome. I’m so glad you’ve been able to experience top notch medical treatment with out of the box thinking. ~Racquel~ lupus.net team member
