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Coping

New autoimmune disease I can't do this anymore. Im tired of the fight i spend more time to bed then not. Just diagnosed with another very rare autoimmune disease colongenous disease . The steroid is awful I just can't I'm so frigin depressed angry sle is not getting better its getting worse i should know I live in my body
Im done
Have a great day ☀️

  1. I can hear the pain in your post and my heart truly goes out to you. Lupus can be so cruel. Managing lupus is already a lot, let alone when additional diagnoses are added on top of it. Unfortunately, that is the reality for so many lupus warriors. Sending you gentle hugs and love 💜
    Gabby (team member)

    1. Ty so much I know I'm not the only one it just feels like it sometimes 💜

  2. I'm so sorry, . It sucks when you are dealing with not just one autoimmune condition, but more than one and a rare one, at that. There's no way to sugarcoat news like that, so I won't insult you with trying.

    Please know we're here for you. Whether it's a bad day, a really bad day, or maybe even a good day, please know you are welcome to come here anytime and post.

    We can't offer much. But we can offer a (cyber) shoulder to cry on and a listening ear.

    Best, Erin, Team Member.

    1. Ty so much

  3. Dont give up , the hardest days are alone in your own head and no one understanding . we all have terrible horrible times with Lupus , how your feeling is so normal its ridiculous how much I feel for you .

    1. ,
      As Erin mentioned, please know this community is here for you.
      Reach out anytime. ~Doreen (Team Member)

    2. ,
      Your kind words of support are greatly appreciated.
      ~Doreen (Team Member)

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