Unwanted Lupus Warrior Promotion

Hmmm!! Who would ever thought that I would be living a life as a Lupus Warrior who has been diagnosed almost three years. This new position has not been easy or fun. The journey as a Lupus Warrior has been very quite interesting and host of mystery wonders of the next symptom I may encounter on my unexpected bad day(s). Do you often wonder to yourself like I do is when you have days and sometimes weeks of good time of almost feeling like your normal self that you at time can’t enjoy it to much because you afraid that unpredictable lupus will soon rear its ugly head out of nowhere and you know how or when to expect its results when it do. That’s like still allowing lupus to have power over our thinking as well since we already know it has power of our life to a certain point. I often say to myself in the mirror that it’s not fair GOD. Why me then HE says why not you. I have the opportunity to show and share to others Lupus Warriors, caregivers, supporters, etc. that just because I have lupus it don’t have me by trusting in GOD to help me through whatever I gotta go through to show that life don’t have to end because we have this crazy unpredictable disease call Lupus. We just have to learn to make it adapt to our lives by taking control of it the best way we know how. I be honest even though am going on my 3rd year with being a Lupus Warrior I still at times don’t know where to start or what to do to get a get grip on maintaining control on it. And how can a person with inaccurate insurance, not enough money to pay for all medications needed to keep all other chronic illnesses related to lupus under control and managed. New position as Lupus Warrior is not easy and very demanding at times and often misunderstood by others who can’t relate to what lupus warriors like myself deal with on a daily basis. The old us nearly exists anymore because we have been replaced with a new us that we didn’t not ask for at all or the new position we have now as part of our lives that we can’t quit if we wanted too unless we give up on ourselves and life in general. We no longer the same physically, mentally, emotionally, spiritually, and most of all we are no longer who we once was before our diagnosis and new position we have been promoted to without an option of saying NO I DON’T WANT THIS PROMOTION.