What are your experiences managing lupus when treatment advice isn't clear or you don't have the necessary resources?
What helps you get through the day?
, well, I'm kinda in the same boat as you are. The rheumatologist I see now isn't very helpful. So, I'm looking for another one. But, I am being proactive about looking too. Good luck!
Geri Rodriguez Moderator
Hi @reggiehall and @lisamarie42
When I was first diagnosed I went to see multiple rheumatologists and got various second opinions. I also researched so many things online. As patients if something isnt clear, dont be afraid to ask questions and demand the proper treatmemnt. - Geri (lupus.net, team member)
Racquel H. Dozier Moderator
I look to tuning into my body and different lupus support groups for some direction. It's hard to find the right doctor for you so you have to really keep searching. I hope you found a doctor to help you out. ~Racquel~ lupus.net team member