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Read conversations, start a discussion, and connect with others about Lupus.

What does it mean to live with lupus?

What do you wish the world better understood about life with lupus?...

Medication

Has anyone had their medication not work? Taking Hydroxychloriquin and Methotrexate and still in pain. Very frustrating!...

Self Care and Lupus

Educate yourself on every aspect of being diagnosed with Lupus ~ Body, Mind and Spirit. Become your own trusted advocate. 🌻...

Feeling worthless

How does everyone deal with feeling like a worthless inconvenience when in a flare up and just burnt out to the core? I feel completely alone with no support or...

Neurologist

Hi everyone, I'm curious if a neurologist can refer an ANA blood test to test for lupus? Or can only a rheumatologist? Thanks...

APS Pregnancy Lupus

Recently been diagnosed with lupus after having complications leading to a baby loss at 23 weeks. Wondering how people went about getting diagnosed and if medications something that help build...

Keep my spoons

I got a key chain with 14 little spoons. I start with 14 and I stop when I hit 10 but keep in the back of my mind I make...

Disbelief

It's hard to have lupus and not look "sick". I never got the face rash and for a long time I had a difficulty with getting others, physicians included, to...

Two of our mothers pass away with Lupus!

More ways to keep on moving and sharing our knowledge and wisdom. What else can be done. We host meetings and now zoom. Also, scholarship events. We need more ideas...

State disability

How do you all feel about State disability? I’m trying for myself, but was turned down two times . I will be seeing a judge in June I also been...

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