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Has anyone have trouble with breathing like the feeling of not getting enough air or going up level of stairs your out of breath? I get this sometimes like now really bad but I go into hospital and drs can’t find anything yet I can feel and hear rattling or wheezing other times my heart racing or I call it fluttering and then it goes away

  1. I am sorry to hear you are experiencing unexplained breathing trouble, that sounds scary. Lupus can lead to a variety of different respiratory and breathing problems that differs from person to person. I would suggest talking to your doctor to better understand your specific symptoms. In the meantime, this article explains the different respiratory issues associated with lupus: and this article explains the connection between lupus and asthma and COPD: I hope there is some useful information in there for you!
    Gabby (team member)

    1. thank you articles were helpful

    2. ,
      I just wanted to add an additional article from one of our Patient Leaders on her experience with breathing issues/shortness of breath:
      Always know this community is here for you, reach out anytime.
      ~Doreen (Team Member)

  2. I have has some respiratory issues when I was dealing with costochondritis and pleurisy and pneumonia. These issues were the cause of the shortness of breath. The wheezing came for me with the pneumonia. Have you talked to your doctor to have him check it all out? I hope you. A find some relief real soon . ~Racquel~ team member

    1. I have and my last chest X-ray showed clear but I’m going for breathing test tomorrow so see what happens Ty for the reply

      1. Hi Happy! I have a lot of breathing issues secondary to my lupus. As a kid I got the croup allllll the time. As an adult I deal with frequent coughing, frequent bronchitis, shortness of breath at times, pleurisy, and things I’m probably forgetting. I really thought I had written about my respiratory issues and how they actually lead to a lupus diagnosis. (After ten+ years of all kinds of random symptoms no one could diagnose) I can’t believe I’ve never written about it, I will be doing that soon. I would recommend that try to get in to see a pulmonologist if you haven't already. Depending on your insurance you may need a referral. If you are unsure you can either call your insurance company or check with your pcp. In case you don’t know pulmonologist specialize in all things lungs and breathing and can help you to figure out what is going on. After years of issues I was diagnosed with Bronchiectasis. The treatment has helped quite a bit. I HIGHLY RECOMMEND that you keep track of all your symptoms, if anything you do/try, makes your symptoms better, or worse. I’ve learned as my time as an RN as well as my time as a chronic patient that drs respond better to documentation they can physically hold on to. I hope that helps. Big hugs! Amber B, RN ( team moderator)

        1. Thank you I will check it out for sure I just finished the breathing test had not yet today maybe 🤔 hugs to you

        2. ,
          How did the breathing test go?
          Please keep us updated when you get a chance.
          We'll be keeping you in our continued thoughts.
          ~Doreen (Team Member)

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